Blog / Nicky's Life · September 24, 2015

Nicky’s Life Part 13


June 2003 – 6 year old Nicky went to Children’s Skin Disease Foundation/Camp Wonder for the first time and it completely changed his life. Even though Nicky is too old to be a camper now, they made him an honorary counselor, so he can still go. We are enormously thankful, more than we can ever say or even repay. It’s a time for Nicky to spend time with other EB kids and to be with people that truly care and understand EB fully. In this picture… while all the other kids rode the horses, Nicky was too afraid to do that, so he just rode on the little carriage behind it. He loved it!

More of Nicky’s story in the book… Thank you so much for your support!!

Love & Light,



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