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November 2004 – Nicky was 8 years old here, back when I could still give him baths. I did put a little bleach in the water to kill infections, but not a whole lot. At the time the pain level was not as bad, plus his little brother, who was 1 year old at the time, used to be his adorable self and come and play with him and the water and put toys in the water while Nicky soaked. It was a fun time for both. It used to be preferable to soak him before taking off the bandages because it made everything come off very easily. By the time Nicky turned 13 or so, however, the pain level became so unbearable that we stopped the baths altogether and started either soaking a limb at the time or just change the bandages without soaking. His health hasn’t suffered, he hasn’t had more infections and his pain level during bandage changes has vastly decreased because of it. We do what we must… changing things as we go along. Always thinking outside the box to ensure optimal care.

More of Nicky’s story in the book… Thank you so much for your support!!
http://www.butterflychildamothersjourney.com/?page_id=19

Love & Light,

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