I started taking Nicky to camp in 2003 when I was pregnant with Connor and we’ve gone every year since. Nicky told me the other day that he’ll go as long as they allow him, “it’s MY week” he told me.
Surrounded by other EB kids and Doctors/Nurses and Counselors that are so incredibly caring, he feels safe and he has so much fun.
More of Nicky’s story in the book… Thank you so much for your support!!
Love & Light,