Nicky’s Life Part 36

12549032_428028900728357_5923110618928491714_nJune 2008 – Nicky was 11 years old in this picture taken at Camp Wonder in Livermore (CA).

I started taking Nicky to camp in 2003 when I was pregnant with Connor and we’ve gone every year since. Nicky told me the other day that he’ll go as long as they allow him, “it’s MY week” he told me.

Surrounded by other EB kids and Doctors/Nurses and Counselors that are so incredibly caring, he feels safe and he has so much fun.

More of Nicky’s story in the book… Thank you so much for your support!!
http://www.butterflychildamothersjourney.com/?page_id=19

Love & Light,

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