If I learned to smile despite the yearning to cry, it’s because my new “normal” was to make him smile.
I am done being told what to believe, what to be afraid of, who to trust, what to think and who to hate.
Why is RDEB medically fragile? Mostly because of the open wounds and the consequences of having non-healing 2nd degree burn-like wounds, which can vary and can be extremely damaging, even lethal. The skin, after all, is the largest organ of the body and it affects everything he does.