Caregivers are selfless and do what they do because they love the person they care for, most often without monetary compensation. If you know a caregiver and want to show your appreciation, here are some ideas: Encourage him or her to relax by a gift of bubble bath items Pay them a sincere compliment Take his or her kids to the movies or out to the park for the afternoon Don’t compare their life or their loved one they are caring for with so-and-so Invite them out for coffee or lunch Ask them to tell you about their day Give them a day at theRead More →

December 2008 – Nicky in his Mecca! He was 12 years old in this picture at a GameStop at the Antelope Valley Mall. When Nicky was 4 years old I bought an old SuperNintendo so I could teach him to play Mario Kart; I loved that game! I thought that this is something he could do to entertain himself. Before long he got very good and to make sure he won I used to sit in 2nd place with a bunch of turtles and throw them at anyone that passed me so they could not beat him. 🙂 He would be soooo happy to win!Read More →

Feel free to save them and share! To save the bigger version of the image, click on the image first to load it, then right click to save image. But in this lifetime, my purpose is my son. My purpose is to raise awareness for this awful thing we live with every day. “How are you still smiling?” he asked me. I admit I didn’t know how to answer. “Because I don’t want to cry” is what I told him. I don’t know a single EB mom who wouldn’t sell her soul to take their child’s pain away and would surely give up any strength,Read More →

Can you remember a time in your life when you felt completely helpless? I do. It was the day when a Doctor escorted us into a small room in the hospital after Nicky was born and told us the grim news that not only our newborn son had a rare, extremely painful incurable disorder, but that he would most likely not see his first birthday. I was in shock. Only 19 months earlier I had a baby that was stillborn and I just sat there, numb. Nicky is going to turn 20 years old in two months, and in these two decades I had toRead More →

Almost every day, as I walk by Nicky or get him something, I notice he’s busy watching a “how to” video on how to “cook” something. When he was younger, he would often help me make the cupcake batter or would insist in putting the batter in the cupcake liners or would help putting the sprinklers on. He would be so excited to eat a fresh cupcake, and I would make sure I would make some kind of frosting of his liking and would also make a hole in the cupcake for him to get as much frosting in there as possible so he could eat it. HisRead More →

Feel free to save them and share! To save the bigger version of the image, click on the image first to load it, then right click to save image. Never bad mouth the mother or father of your children to them. Never use your children against their other parent. NEVER! Be the first to say you’re sorry. Laugh until you cry and Love with all your heart. When you see someone suffering, don’t think for a minute that their life has no value, that their life does not matter. Because it does. So many well-wishers often tell us they hope he’ll be OK soon. TheyRead More →

October 1998 – This is my dad’s absolute favorite photo with Nicky, taken at the Milan airport in Italy on the day we were flying back home to Phoenix. Nicky was almost 2 years old. I know it may seem bizarre since they are giving us their back, but dad spent a great deal of time teaching Nicky to walk and just loving him and would follow him around everywhere. Til this day he’s extremely fond of him even though he does not see him often and was thrilled to see him this past summer. My dad is 85 and is still one of theRead More →

One of the big differences I noticed between the me before I was a mom (and a special need mom at that) and after is how I started isolating myself. And how I find myself still doing it. Aside calling my parents once a week, I never call anyone. Ever. Oh yes, I return texts (my favorite mode of communication), but aside that… calling… ugh. It’s like pulling teeth. I dread it like nothing else. I didn’t start to isolate myself willingly, it was a process. At first it was others who would say the most insensitive things to me, leading me to not wantingRead More →