I’ve been real sick with the flu this past week, so I had the chance to finally watch the 8 episodes of Medici: Masters of Florence on Netflix and, let’s just say I was not disappointed. It was a beauty to behold. Glorious. First, let me say that Firenze (Florence), is my absolute favorite city in the entire world, bar none. Not that I have seen the entire world, mind you, but the moment I set foot on this cityRead More →

It occurs to me sometimes that when people in general refer to Nicky or any child with EB as “medically fragile”, they may not truly understand what that means. And the truth is that the definition varies widely not only depending by the form of EB but also from patient to patient. Since my only “specialization” is with Nicky himself, I will attempt to clarify what that means to Nicky being called “medically fragile”, which may not be far from describingRead More →

Feel free to save them and share! To save the bigger version of the image, click on the image first to load it, then right click to save image. There is no sugar-coating EB or trying to make it worse than it is, we couldn’t imagine a worse condition, ever. It’s treasuring the little things that inspires to greater things… and it is the little things that make life worth living. I have a child that loves me more than anything,Read More →

March 2009 – Brotherly Love! Nicky (12 years old) is hugging his little brother Connor (5 years old). So cute!!! I love doing digital scrapbooking but I haven’t done it in a very long time… as soon as I am finished digitizing all my old videos I will try to devote a morning a week doing this again. So much fun! How cute is this brotherly love page? I love, love, love my babies. More of Nicky’s story in theRead More →

So… ever since the election I decided that my desire for sanity needed immediate precedence over the desire of being well-informed. Being well-informed nowadays, I found out, is almost impossible anyway. With the advent of fake news and the news biz in general being more interested in generating profit and viewership over reporting actual news, it seems to me that our society, at least in the US, is in serious decline. Nobody knows anything anymore. People believe everything they readRead More →

As Nicky’s 20th Birthday came and went, I am reminded of so many moments in his life where things were dicey. When I really thought he wasn’t going to make it to his 8th birthday, let alone reach his twenties. When he was 5 years old, in fact, he took a bad fall, which denuded both his legs of skin from his knee to the ankle. His knees and ankles were already non-healing areas by then. After 2 years ofRead More →

Feel free to save them and share! To save the bigger version of the image, click on the image first to load it, then right click to save image. The past cannot be changed, it can only be accepted. Real friends heal, they really do. If Nicky’s existence has taught me anything is not to judge situations I’ve never been in. The only thing I can do is be there for that person with an ear to listen and armsRead More →

I’ve been working “not exactly diligently” in digitizing all my old VHS & 8mm videos and it’s a tougher project to do that I initially realized. I would have wanted to be done by now but it’s become very hard. I am very far from being done. It’s not hard doing the digitizing per se, that part is very easy. I connect the video camera (or the old VHS player) to the computer, start my little program, then press playRead More →