Author : Silvia

370 posts

In Honor of Pregnancy and Infant Loss Remembrance Day I took two beautiful images of angels and put two of my favorite poems on them. I hope you like them, I am posting these below. Original size is much bigger, simply click on the image itself to see original size. Feel free to take them …
I don’t know if it’s because Nicky is getting older, EB is getting restless, I am getting older or what is the culprit, but I feel as if lately my fuse has shortened quite a bit. Of course it might also have to do with the election and my unrelenting disgust at all the lies …
Hello everyone, just a quick notice! The Kindle editions of BOTH Living with Epidermolysis Bullosa and Special Mommy Chronicles are now available for the NEW low price of $2.99! Click the covers below to be taken to their respective page at amazon.com      If you don’t have a kindle, the APPS are FREE for …
Every year the wonderful organizers of Camp Wonder send the parents to a trip to visit the local area of interest. We always look forward to these trips and Bill is such a gifted travel guide! Over the past few years, Bill has taken us to a trip to Napa… …a wonderful excursion in San …
There seem to be a trend going on nowadays that it’s really quite disturbing. I am unsure where these people are getting their information they so sternly believe or if a lie is perpetrated that it’s shared without anyone checking to make sure it’s “true”, but it’s truly a slap in the face to those that research the truth …
I have to admit it. Through my trials of the past nearly 18 years, not much seems to bother me anymore. I am amazed at the thick skin (pun intended) I’ve developed over the years. I chuckle daily at the things people complain about on Facebook or other social networks, and I know I learned …
This is my book!! It’s basically a compilation of columns I wrote in the early to mid 2000s. “Special Mommy Chronicles” was a featured site in Exceptional Parent Magazine‘s February 2003 issue. It was also featured as an on-going column in the Mahoning Valley Parent Magazine of Ohio from April 2003 to September 2004. Over twenty …
I was asked once why I do not use my personal blog to talk about my son or EB, as others do. The answer is a very personal one and a respectful one. I want to keep everything separate. My life is such a roller coaster right now, and has been for nearly two decades, …
If there was one person in my family that I’ve always admired is my aunt (zia) Caterina. Caterina was actually my great-aunt, as she was my grandma’s little sister. Even though we did not live close by, my dad, who absolutely adored her, made sure we took the time to visit her at least once …
Marilyn Monroe was right in this, one of her favorite quotes. It’s all make believe. It truly is! I was grocery shopping just yesterday and one of those gossip magazines caught my eye… ‘stars without makeup’. I never buy gossip rags, but I do make an exception when we get to see the stars, the stars everyone tries …
After several months of not going to the Beauty Salon to get my ‘full set’ done I noticed yesterday that my hands were disastrous. Not only they looked like I was a farmer, I have that annoying habit of chewing the skin around it too, so there was blood around it and, frankly, they hurt. …
I wrote this as a Facebook/MySpace/Blogspot post a couple of years ago-I tweaked it and updated it a bit but I felt this information is worth sharing and keeping ‘out there’ so to speak. There are quite a few family and friends, including some I’ve reconnected with recently, or within the past couple of years …
The day before the tragic events of 9/11, my family nearly avoided a tragedy as well. My mom was recovered at a hospital in Italy and she was not doing good. In the next few days we almost lost her. She started bleeding heavily in the middle of the night and she became unconscious. By …
About a year ago, when Prince William married Kate Middleton, I ran across an article that stated that the pair were actually 12th cousins, once removed. I was amused. Wow! Being an avid genealogist I think that these findings are quite remarkable. 12th cousins once removed, means the genealogists that researched their ancestries had to …
“Everywhere around the world, they are coming to America”… that’s the words of a song  by Neil Diamond which always pulled at my heartstrings. America always enticed me, and while I never planned to live here per se, the idea of adventure, success and fun was always synonymous to it. I grew up in Europe, Italy to …
Ivrea’s carnival is one of the most famous in the world. It’s a very unique tradition with an equally unique history. Since Ivrea is my hometown I have been quite acquainted with the festivities from a young age, and my sister even served as part of the committee at one point. Most of the photographs …
“Ivrea la bella che le rosse torri specchia sognando a la cerulea Dora nel largo seno, fosca intorno è l’ombra di re Arduino.” I was born in Italy in an old town called Ivrea and my entire family lives there, so speaking of Ivrea is like speaking of my home, my life, my roots. While …
I was adding a few things to the book I am currently writing about Nicky’s life, which is nowhere near done and I was stunned when I realized I already wrote almost 200 pages, and I have 10+ more years of stories to go. These are not 200 pages filled with overly descriptive anecdotes either, no mist …
If you’ve ever driven on Interstate 5 North from Los Angeles towards San Francisco you surely passed something you could neither miss with your eyes nor your nose. As you approach the town of Coalinga you will be hard pressed to miss the thousands of cattle right off the freeway. Cows and cows, as far …
Once again I am forced to post these pics on my blog instead of, say, Facebook or caringbridge due to Facebook’s constantly deleting my wound pics and caringbridge not really giving me much space or a way to clearly display these. The detailed blog about the cast removal is here: http://www.caringbridge.org/visit/nickyz/journal Below is the hand carefully re-wrapped by the PT …
So, silly me… I wanted to have a ton of pre-surgery pics of Nicky’s hand, but I messed up. Nicky wanted his ‘left’ hand done so I took several photos of that hand, but then two weeks ago he changed his mind and decided to do the right one and I never did take good, …
It’s true with anything, anywhere in the world. You give something for free for people in need and some will take absolute and complete advantage of it, making someone else suffer in turn because they are taking something away from those who desperately need it. But what do we do, take this advantage away, make …
Last year I started watching a TV show called ‘Celebrity Ghost Stories’. I know what you’re thinking, especially the skeptics, but even if only 1% of these stories are true, it’s still a compelling argument for the paranormal. The most touching story I saw belonged to an Italian-American actor called Enrico Colantoni. I teared up …
When Nicky was born, 15 years ago, the Internet was not like what it is today. I know, it’s crazy to think about it, right? I used to browse ‘usenet newsgroups’ and to belong to an email group of any sort you had to send an email to a listserve to join or leave a group. There were …