September 5, 2004 Connor’s first birthday was really fun for Nicky. He laughed and laughed seeing Connor destroy his mini-cake (which we got in purpose, LOL)! After I gave Connor a bath we continued the celebration with present opening. Connor at 1 was a little doll. Nicky just adored him. You can feel the connection just looking at this picture! They are still extremely close today and always will. Their bond is unbreakable. More in the book –> http://www.butterflychildamothersjourney.com   Post Views: 735Read More →

December 2001 – We spent the holidays in Italy with my family mostly because flying after 9/11 was absurdly cheap, but I was aching to see my mom, who spent the 3 previous months in a hospital following a scary infection that almost took her life. Nicky had a blast in the snow, he was so cute. Just yesterday my husband asked me if we could give away this coat he’s wearing in this pic. I am not a hoarder, but, ummm… no. No way. Too many memories attached to it. Connor also wore it, and it belonged to my niece before Nicky. It was just perfect for him! Easy to put on too! More in the book –> http://www.butterflychildamothersjourney.com   Post Views: 945Read More →

August 2013 – Nicky right after he woke up from his hand surgery at CHLA with his dad. It always amazed me how strong he is. He wanted this surgery and it ended up to be really good for him in the long run as well. We use a splint to keep the thumb “out” at night and even after 3.5 years using that with the wrapping he lost very minimal web space. Of course his hands are far from normal looking, but he can use them, which it’s huge in my book. He truly cherishes his hands, so we’ll keep doing what we’re doing! More of Nicky’s story in the book… Thank you so much for your support!! http://butterflychildamothersjourney.com Love & Light,   Post Views: 1,037Read More →

Halloween 1999 – Nicky was almost 3 years old when I took him to the mall to trick-or treat. I always looked for soft costumes and this one of “Po” of the Teletubbies totally fit the bill! At the time we lived in Arizona. How cute is my little one? More of Nicky’s story in the book… Thank you so much for your support!! http://butterflychildamothersjourney.com Love & Light,   Post Views: 842Read More →

August 1998 – When we spent several months in Italy in 1998 so that my parents could help me take care of Nicky, I had the opportunity to have my little guy spend quality time with my Nonna Rina, which is Nicky’s great-grandma (BisNonna). We would go visit her often and she would always ask for kisses. It was so sweet. I miss her dearly, but I know she had a long life, passing away only a couple of months short of her 102nd birthday. The following is from my book “Butterfly Child”: “When we came back from our trip we had a fabulous party for my grandma’s 95th birthday. It was a day I will never forget. This is the grandma that lost a baby girl on her 8th month of pregnancy in the mid 1940s who told me that I would be happy someday and that pain wouldRead More →

January 2008 – Nicky showing his flexibility! This is one of the few things he can do with his body. He may not be able to walk or move much, so it’s always fun for me to see this fun/crazy side of him. In this picture Nicky was 12 and he hasn’t really changed much at all, he truly looks the same!!! That smile and the ability to not think about his condition and concentrate on doing what he can do is something I truly admire about him. He does not dwell or despair on the ugliness of his EB. He loves his routine and does what he can do instead. I don’t know if there will ever be a cure for him, although that’s what I hope everyday, but if he’s happy on a daily basis and he’s able to smile and laugh, as a mom, I know IRead More →

March 2014 – When Nicky was 4 years old I decided that perhaps playing video games would be beneficial to him and something he could do without getting hurt. I bought a used Super Nintendo and we started playing Mario Kart every day. He loved it. I wanted him to win, so I would sit in 2nd place and throw turtles at anyone that passed me. Before long Nicky got so good he not only didn’t need my help, but when I tried to win, I hardly ever could!! Nicky’s love affair with Mario and the gang continues till today. 3.5 years ago with the help of a variety of wonderful souls I was able to redo his bedroom that was in dire need of revamping and it was all decorated with Mario stuff. He loves it. More of Nicky’s story in the book… Thank you so much for yourRead More →

August 1997 – Nicky and I on our way to our anniversary dinner. ~ Excerpt from the Book “Butterfly Child” “The Physical Therapist became sort of a confidant; after all, I saw her twice a week and I felt she was one of the few people that might have answers to a question I was constantly asking myself: ‘Is this normal?’ It’s just the nature of having a child with a disability and not having another child to compare him to. Sometime it was normal, but most often it wasn’t. I was determined to give my son a quality of life that was as high as I could make it, and I knew that was dependent upon the care, education and advocacy he received as a result of my efforts. Of course, that would be true for any child, disabled or not, but in my case, I felt I wasRead More →