There seem to be a trend going on nowadays that it’s really quite disturbing. I am unsure where these people are getting their information they so sternly believe or if a lie is perpetrated that it’s shared without anyone checking to make sure it’s “true”, but it’s truly a slap in the face to those that research the truth at every turn and really know what is going on and that indeed have all the facts at hand. Yes, I am talking about politics, but in general, it speaks about our society at large as well. Maybe it’s because I didn’t grow up with a computer at my fingertips in the late 70s and early 80s, but there was always a place, especially in High School that fascinated me: the library. If I heard any weird rumor or story either in the news or a legend of any kind, I was always wanting to knowRead More →

I have to admit it. Through my trials of the past nearly 18 years, not much seems to bother me anymore. I am amazed at the thick skin (pun intended) I’ve developed over the years. I chuckle daily at the things people complain about on Facebook or other social networks, and I know I learned a lot and have come a long way from the teenage girl whose ego was easily bruised. I strive to be the gal who does not care about what people think, what people do, how people behave, but when it comes to my children, some things I just can’t shrug off so easily. But maybe, when it comes to my children, it should bother me, or should it? “Yes, it bothers me” #1. I suppose the biggest pet peeve I have is how every now and again some folk talk about how God or “Nature” punishesRead More →

This is my book!! It’s basically a compilation of columns I wrote in the early to mid 2000s. “Special Mommy Chronicles” was a featured site in Exceptional Parent Magazine‘s February 2003 issue. It was also featured as an on-going column in the Mahoning Valley Parent Magazine of Ohio from April 2003 to September 2004. Over twenty websites, such as Contemporary Moms, Bridges for Kids and About.com, linked to a column on their front page or posted specific Special Mommy Chronicles Columns/Articles on their website. Here is an image of one of the columns/articles printed in the magazine “Stress Free Living” of April 2003, and check out the image of another one of the column/articles published in the “Parent Paper” of Northern New Jersey & Rockland County. Special Mommy Chronicles (Paperback) by Silvia Corradin  The “Special Mommy Chronicles” was a column written by Silvia C., the mom of a Special Need child (sonRead More →

I was asked once why I do not use my personal blog to talk about my son or EB, as others do. The answer is a very personal one and a respectful one. I want to keep everything separate. My life is such a roller coaster right now, and has been for nearly two decades, that if I don’t keep my thoughts straight, I might lose my mind. I keep a blog about Nicky, where on occasion I always talk about my husband’s health at Caringbridge (http://www.caringbridge.org/visit/nickyz), and I talk endlessly about EB at my Blog at the EB Info World website (http://blog.ebinfoworld.com/). I even keep a blog about my photography and graphic design (http://blog.sleepingangel.com/). But this Blog is about me. The person that plays the role of caregiver, mom, nurse, student, cook, and of course there is the cleaning, the laundry, the grocery shopping, mom’s taxi… and the listRead More →

If there was one person in my family that I’ve always admired is my aunt (zia) Caterina. Caterina was actually my great-aunt, as she was my grandma’s little sister. Even though we did not live close by, my dad, who absolutely adored her, made sure we took the time to visit her at least once a year. Why was she so special? Mainly because she suffered a great deal, which made her one of the most compassionate and kind people around. Not only she suffered traumatic injuries when she was a pre-teen, during WW1, she used the little disability money she received to help her family and then the family of her brother-who died young and left a young family behind, and then also the family of her niece, when her husband also died young. She was also my great-grandparent’s only caregiver in their later years. Zia Caterina never gotRead More →

Marilyn Monroe was right in this, one of her favorite quotes. It’s all make believe. It truly is! I was grocery shopping just yesterday and one of those gossip magazines caught my eye… ‘stars without makeup’. I never buy gossip rags, but I do make an exception when we get to see the stars, the stars everyone tries to imitate because they seem to be so perfect, so flawless, so amazingly beautiful, being, well, so amazingly human! Yes, I bought it. Guilty as charged. I do buy the ‘worse beach bodies’ issues as well. Why? Because then I feel normal, away from the celebrity culture where the woman’s ‘perfect’ body mimics the one of an escapee from a nazi concentration camp. Our current culture glamorizes it even more than people realize. Think about what we see on TV. Every single TV show is filled with a cast of gorgeous, glamourous thin folks, mostlyRead More →

After several months of not going to the Beauty Salon to get my ‘full set’ done I noticed yesterday that my hands were disastrous. Not only they looked like I was a farmer, I have that annoying habit of chewing the skin around it too, so there was blood around it and, frankly, they hurt. Not again!! My husband always tells me I have a non-addictive personality and a few friends have commented on that as well, but there is one thing that I cannot stop and it is biting my nails when I stress out. That’s right, I don’t reach for that Oreo Cookie or pour myself several glasses of Tequila shots, nor I feel the need to take any drugs, I… bite my nails. And while on a broader sense, its a minute problem in comparison, is still a bothersome one. It all started one day on theRead More →

I wrote this as a Facebook/MySpace/Blogspot post a couple of years ago-I tweaked it and updated it a bit but I felt this information is worth sharing and keeping ‘out there’ so to speak. There are quite a few family and friends, including some I’ve reconnected with recently, or within the past couple of years who are not sure what Nicky has or what’s going on with his health, so I figured I’d clue everyone in because in the coming years I will need your support more than ever. In a nutshell, Nicky was born with a skin disorder that falls under the umbrella of Epidermolysis Bullosa, a fancy Latin term meaning Blistering of the Epidermis. There are three main forms of EB, Nicky has the Dystrophic form, the form that makes the deepest wound-a wound that travels down to the dermis, also similar to 2nd degree burn-like wounds. HisRead More →

The day before the tragic events of 9/11, my family nearly avoided a tragedy as well. My mom was recovered at a hospital in Italy and she was not doing good. In the next few days we almost lost her. She started bleeding heavily in the middle of the night and she became unconscious. By the grace of God, a Nurse checked in on her in the nick of time and found her in a pool of blood. The amazing Italian Doctors worked feavereshly to save her, they even got drugs from the US to get her better, she would stay in the hospital 2 months before going home. I was emotional to say the least about the whole thing. Of course I couldn’t talk to her, she was unconcious and then she couldn’t speak at all for sometime, so my dad and my sisters would fill me in allRead More →