If there is one thing my parents (seen here in a photo shortly after their wedding in 1957) instilled in me at a young age is to be weary of friends. My mom and dad didn’t have many friends, but those they did have were really, really great; however, to sort out the gems from the fakes was not an easy task. Both of them had told me stories about how they were hurt by friends in many different ways.Read More →

As some of you may or may not know, my son Nicholas was born with a rare and incredibly painful skin disorder called Epidermolysis Bullosa, the Recessive Dystrophic form. He will be 16 years old in a couple of weeks. A photographer, a dear friend that I met at the College I am attending, wants to make a difference and help the cause, we need a cure and we need it NOW! She started photographing Nicky’s life and him livingRead More →

I always found it ironic that the last day of EB Awareness Week falls on Halloween Day. After all, for many EB Children and Adults, being covered in gauze is a daily routine, not a once-a-year costume. I further wish I could say that I liked Mummy costumes or that I would ever dress myself or any my sons like that, including my son with EB, but I often felt a bit uneasy about it. No thanks. I hate gauze. Really, IRead More →

Steel Magnolias will go down in history, along with ‘It’s a Wonderful Life’ and very few others, as a movie where there is a single scene that makes me cry… if not sob, each and every time I watch it. This scene, acted by Sally Field, It is so powerful and so well acted, I feel I am her. Of course, at the time of the movie release, I was yet to have children, and I still cried. I justRead More →

Have you ever had a Deja-vu? A feeling of something being so incredibly familiar that should not be at all since you never saw it before? That is Florence for me. Firenze. Even though I never once thought about it, it was the first time in my life where I started wondering about reincarnation. Not sure I believed it, but I did not know what else to think. A few years later I got the same exact feeling about Boston. EvenRead More →

In Honor of Pregnancy and Infant Loss Remembrance Day I took two beautiful images of angels and put two of my favorite poems on them. I hope you like them, I am posting these below. Original size is much bigger, simply click on the image itself to see original size. Feel free to take them and use them as you wish. God Bless,           Post Views: 2,193Read More →

I don’t know if it’s because Nicky is getting older, EB is getting restless, I am getting older or what is the culprit, but I feel as if lately my fuse has shortened quite a bit. Of course it might also have to do with the election and my unrelenting disgust at all the lies being told by one Pinocchio who flip flops every two minutes depending on who is listening. At least I can look forward to that beingRead More →

Hello everyone, just a quick notice! The Kindle editions of BOTH Living with Epidermolysis Bullosa and Special Mommy Chronicles are now available for the NEW low price of $2.99! Click the covers below to be taken to their respective page at amazon.com      If you don’t have a kindle, the APPS are FREE for all platforms, including PC & MACs! Get it HERE!! Thank you SO MUCH!! Post Views: 346Read More →