I don’t know if it’s because Nicky is getting older, EB is getting restless, I am getting older or what is the culprit, but I feel as if lately my fuse has shortened quite a bit. Of course it might also have to do with the election and my unrelenting disgust at all the lies being told by one Pinocchio who flip flops every two minutes depending on who is listening. At least I can look forward to that being over in a month. All I know is that I had to stop drinking wine, or my occasional bottle of Vodka because I felt I could not cope changing my son’s bandages without it. Only now I feel like I am going to explode. What am I going to do? I bought some sugar free lemonade stuff that ‘tastes’ like Margaritas, Appletini and others, without the buzz. So far IRead More →

Hello everyone, just a quick notice! The Kindle editions of BOTH Living with Epidermolysis Bullosa and Special Mommy Chronicles are now available for the NEW low price of $2.99! Click the covers below to be taken to their respective page at amazon.com      If you don’t have a kindle, the APPS are FREE for all platforms, including PC & MACs! Get it HERE!! Thank you SO MUCH!! Post Views: 550Read More →

Every year the wonderful organizers of Camp Wonder send the parents to a trip to visit the local area of interest. We always look forward to these trips and Bill is such a gifted travel guide! Over the past few years, Bill has taken us to a trip to Napa… …a wonderful excursion in San Francisco… …an amazing trip to Monterey and Carmel… …and just as if we can’t think of where we could possibly go next that is at a reasonable distance, Mr. Bill takes us to Muir Woods, an amazing place I never knew existed! Afterwards we had a great lunch at the Marina and even went to take some amazing photos of the Golden Gate Bridge. …and here is the video I promised of the pics I took at Muir Woods. Make sure to click on the wheel to adjust the settings to 1080HD and view at fullRead More →

There seem to be a trend going on nowadays that it’s really quite disturbing. I am unsure where these people are getting their information they so sternly believe or if a lie is perpetrated that it’s shared without anyone checking to make sure it’s “true”, but it’s truly a slap in the face to those that research the truth at every turn and really know what is going on and that indeed have all the facts at hand. Yes, I am talking about politics, but in general, it speaks about our society at large as well. Maybe it’s because I didn’t grow up with a computer at my fingertips in the late 70s and early 80s, but there was always a place, especially in High School that fascinated me: the library. If I heard any weird rumor or story either in the news or a legend of any kind, I was always wanting to knowRead More →

I have to admit it. Through my trials of the past nearly 18 years, not much seems to bother me anymore. I am amazed at the thick skin (pun intended) I’ve developed over the years. I chuckle daily at the things people complain about on Facebook or other social networks, and I know I learned a lot and have come a long way from the teenage girl whose ego was easily bruised. I strive to be the gal who does not care about what people think, what people do, how people behave, but when it comes to my children, some things I just can’t shrug off so easily. But maybe, when it comes to my children, it should bother me, or should it? “Yes, it bothers me” #1. I suppose the biggest pet peeve I have is how every now and again some folk talk about how God or “Nature” punishesRead More →

This is my book!! It’s basically a compilation of columns I wrote in the early to mid 2000s. “Special Mommy Chronicles” was a featured site in Exceptional Parent Magazine‘s February 2003 issue. It was also featured as an on-going column in the Mahoning Valley Parent Magazine of Ohio from April 2003 to September 2004. Over twenty websites, such as Contemporary Moms, Bridges for Kids and About.com, linked to a column on their front page or posted specific Special Mommy Chronicles Columns/Articles on their website. Here is an image of one of the columns/articles printed in the magazine “Stress Free Living” of April 2003, and check out the image of another one of the column/articles published in the “Parent Paper” of Northern New Jersey & Rockland County. Special Mommy Chronicles (Paperback) by Silvia Corradin  The “Special Mommy Chronicles” was a column written by Silvia C., the mom of a Special Need child (sonRead More →

I was asked once why I do not use my personal blog to talk about my son or EB, as others do. The answer is a very personal one and a respectful one. I want to keep everything separate. My life is such a roller coaster right now, and has been for nearly two decades, that if I don’t keep my thoughts straight, I might lose my mind. I keep a blog about Nicky, where on occasion I always talk about my husband’s health at Caringbridge (http://www.caringbridge.org/visit/nickyz), and I talk endlessly about EB at my Blog at the EB Info World website (http://blog.ebinfoworld.com/). I even keep a blog about my photography and graphic design (http://blog.sleepingangel.com/). But this Blog is about me. The person that plays the role of caregiver, mom, nurse, student, cook, and of course there is the cleaning, the laundry, the grocery shopping, mom’s taxi… and the listRead More →

If there was one person in my family that I’ve always admired is my aunt (zia) Caterina. Caterina was actually my great-aunt, as she was my grandma’s little sister. Even though we did not live close by, my dad, who absolutely adored her, made sure we took the time to visit her at least once a year. Why was she so special? Mainly because she suffered a great deal, which made her one of the most compassionate and kind people around. Not only she suffered traumatic injuries when she was a pre-teen, during WW1, she used the little disability money she received to help her family and then the family of her brother-who died young and left a young family behind, and then also the family of her niece, when her husband also died young. She was also my great-grandparent’s only caregiver in their later years. Zia Caterina never gotRead More →