This is part 4 of an infinite series of photos I am posting on the Facebook page I have for the book I wrote about my journey raising a child with RDEB called Butterfly Child. I am posting a few images from Nicky’s life and commenting on either what was going on at the time or explaining things about the picture per se. This “picture commentary” will serve as a companion for anyone that is kind enough to purchase and read my book as my appreciation and thanks. June 1998 – Nicky on my parent’s balcony in Italy. I was meticulous in keeping his skin covered to prevent new blisters and I used to always try hard to keep his hands protected by putting these gloves on. By then he had permanently lost all his nails, but the gloves didn’t prevent the scarring that would cause the webbing and contracting of the fingers.Read More →

On the Facebook page I have for the book I wrote about my journey raising a child with RDEB called Butterfly Child, I am posting a few images from Nicky’s life and commenting on either what was going on at the time or explaining things about the picture per se. This “picture commentary” will serve as a companion for anyone that is kind enough to purchase and read my book as my appreciation and thanks. April 1998 – Another baptism, this time in Italy in a catholic church. Nicky looked spiffy 🙂 I was happy if only because my whole family was there, including several cousins. That meant a lot to me! Here’s the link on where to purchase the book if interested: http://www.butterflychildamothersjourney.com/?page_id=19 Love & Light, Post Views: 584Read More →

On the Facebook page I have for the book I wrote about my journey raising a child with RDEB called Butterfly Child, I started posting a few images from Nicky’s first years and commenting on either what was going on at the time or explaining things about the picture per se. As time moves on I will move on as Nicky ages. This “picture commentary” will serve as a companion for anyone that is kind enough to purchase and read my book as my appreciation and thanks. This is the second one I posted in late April and this is what I wrote below: September 1997 – This is the day Nicky got baptized and dedicated at his Nonna’s church (yes, the gorgeous lady next to me is Nicky’s grandma, his dad’s mom!) in Alamogordo (NM). The priest picked him up by his armpits and I just about had a heartRead More →

On the Facebook page I have for the book I wrote about my journey raising a child with RDEB called Butterfly Child, I started posting a few images from Nicky’s first years and commenting on either what was going on at the time or explaining things about the picture per se. As time moves on I will move on as Nicky ages. This “picture commentary” will serve as a companion for anyone that is kind enough to purchase and read my book as my appreciation and thanks. This is the first one I posted in late April and this is what I wrote below: August 1997 – Nicky was 9 months old in this picture. It was so hard to give him a bath even back then. I resorted in inflating a little soft tub with a towel at the bottom for softness and just doing it in the bedroomRead More →