It’s often a full time job caring for a child who is medically fragile. We are not only parents; we become nurses, therapists, chauffeurs, companions and more. For some of us, the needs of our child are so time consuming that working outside of the home becomes impossible and impractical. Thankfully, certain cities, counties or/and states realize this and help. Many children with disabilities receive support, and as their parents it is our responsibility to fill out the mountains of paperwork and jumping through the bureaucratic hoops to get them services, and sometimes it’s hard to even find the support. I wrote this in my book Butterfly Child: It is amazing to me how remarkably difficult it is to locate the services that do exist. Hunting for resources can be an experience comparable to being in a labyrinth. Here I was, thinking California didn’t care about the disabled, and IRead More →