Something happened yesterday that made me realize we have a LONG WAY TO GO before we can say all disabled people are treated like decent human beings, always. Nicky hasn’t been able to walk since he was 15 years old and damaged his feet beyond repair. With RDEB, when an area gets wounded too often, once it does heal (if it does heal), it remains incredibly weak. At this point Nicky can “transfer” from bed to wheelchair, or from wheelchair to car seat etc, but he often gets blisters just from doing that. This means he’s confined to a wheelchair, and due to his skin fragility, he cannot do many things besides watching TV or playing video games. Something that I do for Nicky for fun is take him to see a live taping of TV shows. We’ve seen several over the years, and this is something that’s a lotRead More →