Blog Quotes

Don’t know what to say? Google “what to say to a special needs mom” or “what to say to a bereaved mom” and you will be inundated with amazing, perfect sentences you can add to your repertoire and make you look as the most amazing, empathetic person on the planet. Try it, seriously. You no longer need to abandon your friends and families when they need you, just Google what to say. You will be their hero forever. Nicky’s form of EB was one of the rarest, and as much as I admired and trusted his Doctors, I also knew that I – and Nicky once he was old enough to understand – had the final say inRead More

I care too much, and it’s OK

“I care too much, and it’s OK. I will not let anyone tell me I am wrong to love, to have empathy or compassion. Period.” That is what I posted on Facebook this morning with this image on the right from this great Minister John Pavlovitz which I’ve come to greatly respect. What prompted this post? Basically the hatred that I see from my so-called “friends” and people that I once admired. People that have nothing better to do with their day but spewing uncompassionate statements about the poor, the needy, the handicapped, the immigrants, you name it. The bullying and condescension over the less fortunate is at an all time high. It’s disheartening. My standard operating procedure isRead More

Caring Matters

The other day I came across a post about “9 things Italians living in the US will miss“, and while I concurred with everything posted, the one that spoke to me most was the one about family living close by. Oh, how I miss that! But it goes further than that. It’s the whole culture, the whole mindset that came to mind while I was reading this post. The mindset of caring for one another in a broader sense. In the U.S. most kids move away from home, following job opportunities across the country, moving far away from home, often right at the age of 18. It’s not like Italians are not like that, but they are theRead More

Caring Quote

We never know what people go through behind closed doors that may not share with anyone. Just because they didn’t share their troubles, it does not mean they are fine at all. ~Silvia Corradin Post Views: 28

Supporting Yolanda

Of all the crazy TV shows I watch, one of the silliest must be “The Real Housewives of Beverly Hills”. I think it’s silly mostly because we see what people with an insane amount of money do, like taking a swan to the veterinary, buy a $190,000 ring, travel halfway across the country just to look at a tiny horse with a too-too, or get your bum waxed on national TV. While as human beings, I do believe these women are “mildly” interesting (truly, take the money away and what do you have left?), the reason why I tune in is to watch Yolanda.  I love Yolanda. I love, love, love Yolanda. The moment she was introduced to the show aRead More

Empathy Matters

I wrote about this subject before, but today I came across this website that made me laugh out loud… mainly because their message spoke to me. Take a peek at these sympathy cards by Emily McDowell, here’s one on the right —> It goes without saying that if I had a dollar for every random treatment for EB people have tried to sell me I would be a very rich woman. And I am the kind of mom who is flipping DESPERATE and will try just about anything, yet some of the emails with suggestions I’ve gotten over the years border on the absolute ridiculous, bordering on insanity. Want an example? “Burn his skin, it will regrow withoutRead More