We are the Experts

“This message is so simple, yet it gets forgotten. The people living with the condition are the experts.” I was reading an interview with Michael J. Fox on a magazine and when I read that line I had to underline it a million times. Not only because it’s true, but because it reminds me that asking my son how he feels or what his pain level is on a daily basis is so crucial. Nicky is a pretty brave individual, and he never truly volunteers this information unless it becomes so over the top painful that he has no choice but tell me so I can give him some pain meds. He’s spoiled me in many ways, butRead More