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My Life with my Butterfly

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Grey Genetics

My Interview with Grey Genetics

2021-02-02
By: Silvia
On: February 2, 2021
In: Blog
Tagged: Epidermolysis Bullosa, Grey Genetics, Podcast, rare disorder, skin disorder

A BIG *Thank You* to Grey Genetics for the Interview!!! Post Views: 380Read More →

About Me

Hi!

Hi!

I'm Silvia.
I am the mother of 3 boys, 1 in heaven, 2 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who has the Recessive Dystrophic form of Epidermolysis Bullosa. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more. I hope my life and my struggles through grief and special need parenting inspire you to enjoy each moment.Read more...

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My Other Books

Losing Alex is also an audiobook!

My heartfelt book, Losing Alex, which I wrote after the loss of my first baby, Alex, who was stillborn at full term, is now officially an AudioBook and I couldn't be more proud and humbled by the amazing voice of Marsha Waterbury, for lending her talents for my story.

Thank you Marsha!
Click Below to see it or purchase it!
Prices for the book start at only $2.99!

LosingAlex_audiobook

Help Nicky

Fill Nicky's wishes & needs with a click of the mouse when you visit his Wish List on Amazon or help us purchase bandages not covered by insurance through his Medical Fund. THANK YOU!!!!
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