New episode of Butterfly Talk ready to view! October 15th is Pregnancy and Infant Loss Awareness Day (as a whole, the month of October is also). Why this day is so important to me and why it’s linked to EB Awareness. My story and several tips on coping. Butterfly Talk is a YouTube show where I talk mom to mom about different aspects of coping and celebrating our amazing kids.Enjoy and I hope it’s helpful! Thank you for watching! Post Views: 80Read More →

Just yesterday Model/Author Chrissy Teigen posted something on her Instagram account that blew me away. Her loss. Her Pregnancy Loss. The pictures were so devastating to look at, not because of the images per se, but for the memories they brought back in my mind from my loss, long ago. I don’t think celebrities really know how important it is to share their grief with all of us. Grief sucks. To lose a baby sucks. We, as humans, have a need to not feel alone. I noticed that in the past 24 hours since Chrissy’s loss, a few celebrities have came forward, such as Kate Beckinsale, and shared their loss as well. I have never been so proud and so touched. There was a point that I started sobbing so hard, I felt compelled to thank Chrissy for posting about her loss because when I lost Alex in March 1995,Read More →

October is Pregnancy and Infant Loss Awareness Month, yet stillbirth is still one of the last taboos. The Dictionary defines “stillbirth” as the birth of an infant that has died in the womb (strictly, after having survived through at least the first 28 weeks of pregnancy, earlier instances being regarded as abortion or miscarriage). Somehow, at large, stillbirth is still not considered as the loss of a child. To anyone who has not had personal experience, it can be all too easy to underestimate the impact and the significance. Somehow it does not to count to others. Speaking from personal experience, the death of a baby before birth is no less a death than the death of any other human being. A baby who dies before he or she is born is no less loved and cherished. Like my grandma, who had a stillborn baby girl in the 1940s and talkedRead More →