It is my sincerest hope that now that people are experiencing what I’ve experienced for a couple of decades being “stuck at home” with my son, they will no longer say or imply insensitive things to me such as “you’re so lucky”, or believe is a “luxury” or “must be FUN”. The truth is, it’s not a “vacation” not to be able to go to work and it certainly has made me feel like a failure over the years for not being able to have a career. I even had people say I must be “lazy”. Lazy? Let me tell you how “lazy” I’ve been in my life. By the time I was 24 years old I was the manager of a Domino’s Pizza store and had 30 people “under” me, with dreams of becoming a franchisee. I would end up winning awards and managing various stores successfully. I evenRead More →

I came across a blog yesterday that I could truly relate to. It was about a mom adjusting to her special needs daughter transitioning from “childhood” to “adulthood” after graduation. In her blog she states she learned 5 things about this new stage of her life as a parent of an adult with multiple disabilities, and while being flexible is something I had to do from day 1 and finding activities for Nicky is surely not something I can’t even contemplate, let alone plan without a considerable amount of convincing, the other points she made were well taken. Point #3 hit me hard. Parents of children Nicky’s age (19) are normally either empty-nesters or have their kids in college. Surely they are not at their child’s beck and call 24/7 as I am. I am not complaining, mind you, please do not misunderstand me, I am just relating to thisRead More →