I don’t often talk about Connor in my blogs, but I will today, among other things I just need to get off my chest in the nicest way possible. 😛 I truly feel that the unsung heroes in the special need family are the siblings. Because Connor was born after Nicky, he never had to learn to accept EB, he just “knew” at a young age that Nicky was fragile and he naturally touched him gently even as a toddler. As he grew older he even started being his little servant, not minding at all when Nicky would ask him to get water or get him whatever he needed and never resented him. Connor is now 12, and for a while now he’s developed a love-hate relationship with his brother. So much so that if you ask Nicky if there is something or someone that makes him mad, the only answer,Read More →

I was just thinking last night how sweet and compassionate Connor is with Nicky. He is very patient while I spend an hour almost daily helping Nicky with his homework, about two hours every night changing bandages, about 45 minutes at night putting Nicky to bed, and another 45 minutes in the morning to get him up for the day. I have to help Nicky to get dressed, to the bathroom, I have to get him water, pain meds and the list goes on and on. I was a little frustrated the other morning and didn’t hear Nicky throwing up and Connor came in to hug me and to let me know he gave Nicky some water and a towel to throw up in. I just could not hug him and kiss him enough. “Thank You” “Thank You” “Thank You”!!! Connor is very good at entertaining himself, and is soRead More →