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August 2013 – Nicky right after he woke up from his hand surgery at CHLA with his dad. It always amazed me how strong he is. He wanted this surgery and it ended up to be really good for him in the long run as well. We use a splint to keep the thumb “out” at night and even after 3.5 years using that with the wrapping he lost very minimal web space. Of course his hands are far from normal looking, but he can use them, which it’s huge in my book. He truly cherishes his hands, so we’ll keep doing what we’re doing! More of Nicky’s story in the book… Thank you so much for your support!! http://butterflychildamothersjourney.com Love & Light,   Post Views: 1,106Read More →

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Once again I am forced to post these pics on my blog instead of, say, Facebook or caringbridge due to Facebook’s constantly deleting my wound pics and caringbridge not really giving me much space or a way to clearly display these. The detailed blog about the cast removal is here: http://www.caringbridge.org/visit/nickyz/journal Below is the hand carefully re-wrapped by the PT ladies after the cast was removed. He has a splint under to keep the wrist straight and the hand open.   Below is the hand unwrapped. The thumb may not look like it’s way out, but it’s quite a bit more out than it was, Nicky is absolutely thrilled. The index finger is not where we were hoping, but it’s better than it was and we’ll do physical therapy to pull it back more while the skin on it is still “soft” from surgery. Will explain more on Caringbridge on what that means…   ThisRead More →

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So, silly me… I wanted to have a ton of pre-surgery pics of Nicky’s hand, but I messed up. Nicky wanted his ‘left’ hand done so I took several photos of that hand, but then two weeks ago he changed his mind and decided to do the right one and I never did take good, proper pics of it. The right hand was in slighter worse shape than the left one. While the left hand still has a mostly straight index finger, the right hand did not. Beside that, both hands were in similar shape, as the thumb was webbed toward the palm of the hand and the pinky completely webbed in the hand, so much one could not see it with the naked eye. I wrote a BLOG on Caringbridge http://www.caringbridge.org/visit/nickyz/journal about the whys and the hows of the surgery itself with a bit of history. Since I am limitedRead More →

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It’s true with anything, anywhere in the world. You give something for free for people in need and some will take absolute and complete advantage of it, making someone else suffer in turn because they are taking something away from those who desperately need it. But what do we do, take this advantage away, make stricter rules or close our eyes? Surely the rotten tomatoes of our world needs to pay consequences, but do they? Never in my experience. I always found it perplexing how something designed to specifically help children like my son, who suffer horribly every day of their lives, all of a sudden becomes ‘not available’. It’s everywhere in sight. From that healthy person taking the last handicapped parking spot I badly need to get my son out of the car, to the lady at the amusement park telling us that my son has to wait inRead More →