The last week of October marks ‘EB Awareness Week’. It is a time to increase awareness of EB, to promote the need for a cure, and to spur advocacy on behalf of families suffering with the emotional, financial and physical burden of the disease. EB might be rare, there are approximately 600 patients with the same form of EB that my son has in the United States (which is the Recessive Dystrophic form), but its rarity should not deter people from helping in any way they can, even if the only thing they can do is send a tweet or post something on their Facebook wall with a link to one of the main organizations that are looking for a cure, such as Debra (http://www.debra.org/) or the EBMRF (http://ebkids.org/). After all, EB was ranked as one of the ‘worse’ disorders in the world, making the top 10 ‘Hell on Earth’ onRead More →