{"id":1256,"date":"2015-05-12T18:28:12","date_gmt":"2015-05-12T18:28:12","guid":{"rendered":"http:\/\/blog.silviaskingdom.com\/?p=1256"},"modified":"2017-01-20T07:32:13","modified_gmt":"2017-01-20T15:32:13","slug":"nickys-first-years","status":"publish","type":"post","link":"https:\/\/blog.silviaskingdom.com\/?p=1256","title":{"rendered":"Nicky&#8217;s Life Part 1"},"content":{"rendered":"<p><a href=\"http:\/\/blog.silviaskingdom.com\/wp-content\/uploads\/2015\/05\/sk1.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignright size-full wp-image-1257\" src=\"http:\/\/blog.silviaskingdom.com\/wp-content\/uploads\/2015\/05\/sk1.jpg\" alt=\"sk1\" width=\"344\" height=\"500\" srcset=\"https:\/\/blog.silviaskingdom.com\/wp-content\/uploads\/2015\/05\/sk1.jpg 344w, https:\/\/blog.silviaskingdom.com\/wp-content\/uploads\/2015\/05\/sk1-206x300.jpg 206w\" sizes=\"auto, (max-width: 344px) 100vw, 344px\" \/><\/a><\/p>\n<p>On the <a href=\"https:\/\/www.facebook.com\/butterflychildbook\" target=\"_blank\">Facebook page<\/a> I have for the book I wrote about my journey raising a child with RDEB called <strong><a href=\"http:\/\/www.butterflychildamothersjourney.com\/\" target=\"_blank\">Butterfly Child<\/a><\/strong>, I started posting a few images from Nicky&#8217;s first years and commenting on either what was going on at the time or explaining things about the picture per se. As time moves on I will move on as Nicky ages.<\/p>\n<p>This &#8220;picture commentary&#8221; will serve as a companion for anyone that is kind enough to purchase and read my book as my appreciation and thanks.<\/p>\n<p>This is the first one I posted in late April and this is what I wrote below:<\/p>\n<p><em>August 1997 &#8211; Nicky was 9 months old in this picture. It was so hard to give him a bath even back then. I resorted in inflating a little soft tub with a towel at the bottom for softness and just doing it in the bedroom so I could easily take him out without hurting him. The damage to his hands is quite evident. He already had permanently lost quite a few fingernails. Precious and adorable, my little warrior! <\/em><\/p>\n<p>Here&#8217;s the link on where to purchase the book if interested:<br \/>\n<a href=\"http:\/\/www.butterflychildamothersjourney.com\/?page_id=19\" target=\"_blank\" rel=\"nofollow nofollow\">http:\/\/<wbr \/>www.butterflychildamothersj<wbr \/>ourney.com\/?page_id=19<\/a><\/p>\n<p>Love &amp; Light,<\/p>\n<p><a href=\"http:\/\/blog.silviaskingdom.com\/wp-content\/uploads\/2012\/12\/flower_silvia.gif\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-full wp-image-532\" src=\"http:\/\/blog.silviaskingdom.com\/wp-content\/uploads\/2012\/12\/flower_silvia.gif\" alt=\"flower_silvia\" width=\"174\" height=\"154\" \/><\/a><\/p>\n<div class=\"fb-background-color\">\n\t\t\t  <div \n\t\t\t  \tclass = \"fb-comments\" \n\t\t\t  \tdata-href = \"https:\/\/blog.silviaskingdom.com\/?p=1256\"\n\t\t\t  \tdata-numposts = \"20\"\n\t\t\t  \tdata-lazy = \"true\"\n\t\t\t\tdata-colorscheme = \"light\"\n\t\t\t\tdata-order-by = \"reverse_time\"\n\t\t\t\tdata-mobile=true>\n\t\t\t  <\/div><\/div>\n\t\t  <style>\n\t\t    .fb-background-color {\n\t\t\t\tbackground: #ffffff !important;\n\t\t\t}\n\t\t\t.fb_iframe_widget_fluid_desktop iframe {\n\t\t\t    width: 100% !important;\n\t\t\t}\n\t\t  <\/style>\n\t\t  ","protected":false},"excerpt":{"rendered":"<p>On the Facebook page I have for the book I wrote about my journey raising a child with RDEB called Butterfly Child, I started posting a few images from Nicky&rsquo;s first years and commenting on either what was going on at the time or explaining things about the picture per&#46;&#46;&#46;<\/p>\n","protected":false},"author":1,"featured_media":1257,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4,410],"tags":[137,19,229],"class_list":["post-1256","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog","category-nickyslife","tag-butterfly-child","tag-epidermolysis-bullosa","tag-nickys-life"],"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/posts\/1256","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1256"}],"version-history":[{"count":3,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/posts\/1256\/revisions"}],"predecessor-version":[{"id":1270,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/posts\/1256\/revisions\/1270"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/media\/1257"}],"wp:attachment":[{"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1256"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1256"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1256"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}