{"id":1338,"date":"2015-07-21T18:45:59","date_gmt":"2015-07-21T18:45:59","guid":{"rendered":"http:\/\/blog.silviaskingdom.com\/?p=1338"},"modified":"2017-01-20T07:31:52","modified_gmt":"2017-01-20T15:31:52","slug":"nickys-life-part-7","status":"publish","type":"post","link":"https:\/\/blog.silviaskingdom.com\/?p=1338","title":{"rendered":"Nicky’s Life Part 7"},"content":{"rendered":"

This is part 7 of an infinite series of photos I am posting on the Facebook page<\/a> I have for the book I wrote about my journey raising my son\u00a0with RDEB (Recessive Dystrophic Epidermolysis Bullosa) called Butterfly Child<\/a>.<\/strong>\u00a0I am\u00a0posting a few images from Nicky’s life\u00a0and commenting on either what was going on at the time or explaining things about the picture per se.<\/p>\n

This “picture commentary” will serve as a companion for anyone that is kind enough to purchase and read my book as my appreciation and thanks.<\/p>\n

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March\u00a02000 – Nicky is 3.5 years old here in this photo taken at Lucile Packard Children Hospital @ Stanford as we were getting him ready for his first throat dilatation\/g-tube placement. It was a decision that was hard to make, but in the end his failure to thrive made it impossible to do “nothing”. At 3.5 years old he only weighed 21lb. Only a 3lb gain since his 9 month weigh in at 18lb. His height and head circumference were also dangerously plummeting. I hated putting him through this, but I felt I had no other choice. It was a decision I never regretted.<\/p>\n

He’s clutching his best friends, Timon & Pumba that we got at DisneyWorld a month prior. There is a whole story in the book on how we got those!!!<\/p>\n

Here’s the link on where to purchase the book if interested:
\nhttp:\/\/www.butterflychildamothersjourney.com\/?page_id=19<\/a><\/p>\n

Love & Light,<\/p>\n

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\"Vote<\/a><\/p>\n

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