{"id":1531,"date":"2015-10-19T18:11:04","date_gmt":"2015-10-19T18:11:04","guid":{"rendered":"http:\/\/blog.silviaskingdom.com\/?p=1531"},"modified":"2017-09-30T13:41:33","modified_gmt":"2017-09-30T20:41:33","slug":"confession-of-an-eb-mom","status":"publish","type":"post","link":"https:\/\/blog.silviaskingdom.com\/?p=1531","title":{"rendered":"Confession of an EB mom"},"content":{"rendered":"<p><img loading=\"lazy\" decoding=\"async\" class=\"alignright size-full wp-image-1532\" src=\"http:\/\/blog.silviaskingdom.com\/wp-content\/uploads\/2015\/10\/epidermolysis_bullosa_awareness-685400.jpg\" alt=\"epidermolysis_bullosa_awareness-685400\" width=\"400\" height=\"420\" srcset=\"https:\/\/blog.silviaskingdom.com\/wp-content\/uploads\/2015\/10\/epidermolysis_bullosa_awareness-685400.jpg 400w, https:\/\/blog.silviaskingdom.com\/wp-content\/uploads\/2015\/10\/epidermolysis_bullosa_awareness-685400-286x300.jpg 286w, https:\/\/blog.silviaskingdom.com\/wp-content\/uploads\/2015\/10\/epidermolysis_bullosa_awareness-685400-381x400.jpg 381w\" sizes=\"auto, (max-width: 400px) 100vw, 400px\" \/>This morning I hated being an EB mom. &#8220;Hated&#8221; is such a mild word to describe it too.<\/p>\n<p>Nicky woke up in a lot of pain. He tried to pull something off of him, ripping skin off and causing a wound that was already bad to increase in size and bleed profusely.<\/p>\n<p>As he was crying in pain I had to change all the bandages on his bottom and upper thighs which were green, apply healing ointments, cover and wrap as much as I could. Thank God I had morphine to give him. He is sitting peacefully playing his game now, and I can&#8217;t get over it. I am still shaking.<\/p>\n<p>I then came across an article from a special need mom and something she said struck me as something I could not relate to at all. She said:&#8221;I would not change this journey for the world, as it has made me stronger, wiser and a more courageous person than I ever thought I could be.&#8221;<\/p>\n<p>Sure, having Nicky has made me stronger, wiser and more courageous than I ever thought I could be, but I would be lying through my teeth if I stated that &#8220;I would not change this journey for the world&#8221;.<\/p>\n<p>I don&#8217;t know, maybe her son is not in so much pain, I have no idea what condition he has, but I can tell you right now, I don&#8217;t know a single EB mom who wouldn&#8217;t sell her soul to take their child&#8217;s pain away, and would surely give up any strength, wisdom and courage \u00a0gained through their journey to see that happen.<\/p>\n<p>Yet, here we are. We cannot choose our battles. So many things in our lives are completely out of our control. This experience has indeed\u00a0made me a better parent and advocate; I learned more about life than I ever could have imagined. The inner strength my son has shown in spite of incredible obstacles inspires me every day.<\/p>\n<p>But don&#8217;t think for a moment that I wouldn&#8217;t trade everything for him not to be in pain. Because I would.<\/p>\n<p>Love and Light,<\/p>\n<p><a href=\"http:\/\/blog.silviaskingdom.com\/wp-content\/uploads\/2015\/10\/Silvia-Fall-Tree-DD.gif\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-full wp-image-1533\" src=\"http:\/\/blog.silviaskingdom.com\/wp-content\/uploads\/2015\/10\/Silvia-Fall-Tree-DD.gif\" alt=\"Silvia-Fall-Tree-DD\" width=\"220\" height=\"250\" \/><\/a><\/p>\n<div class=\"fb-background-color\">\n\t\t\t  <div \n\t\t\t  \tclass = \"fb-comments\" \n\t\t\t  \tdata-href = \"https:\/\/blog.silviaskingdom.com\/?p=1531\"\n\t\t\t  \tdata-numposts = \"20\"\n\t\t\t  \tdata-lazy = \"true\"\n\t\t\t\tdata-colorscheme = \"light\"\n\t\t\t\tdata-order-by = \"reverse_time\"\n\t\t\t\tdata-mobile=true>\n\t\t\t  <\/div><\/div>\n\t\t  <style>\n\t\t    .fb-background-color {\n\t\t\t\tbackground: #ffffff !important;\n\t\t\t}\n\t\t\t.fb_iframe_widget_fluid_desktop iframe {\n\t\t\t    width: 100% !important;\n\t\t\t}\n\t\t  <\/style>\n\t\t  ","protected":false},"excerpt":{"rendered":"<p>This morning I hated being an EB mom. &ldquo;Hated&rdquo; is such a mild word to describe it too. Nicky woke up in a lot of pain. He tried to pull something off of him, ripping skin off and causing a wound that was already bad to increase in size and&#46;&#46;&#46;<\/p>\n","protected":false},"author":1,"featured_media":1532,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4],"tags":[271,272,19],"class_list":["post-1531","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog","tag-confessions","tag-eb-mom","tag-epidermolysis-bullosa"],"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/posts\/1531","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1531"}],"version-history":[{"count":2,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/posts\/1531\/revisions"}],"predecessor-version":[{"id":1535,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/posts\/1531\/revisions\/1535"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/media\/1532"}],"wp:attachment":[{"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1531"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1531"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1531"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}