{"id":1760,"date":"2016-02-09T20:01:31","date_gmt":"2016-02-09T20:01:31","guid":{"rendered":"http:\/\/blog.silviaskingdom.com\/?p=1760"},"modified":"2016-02-09T20:01:31","modified_gmt":"2016-02-09T20:01:31","slug":"updates-on-nicky","status":"publish","type":"post","link":"https:\/\/blog.silviaskingdom.com\/?p=1760","title":{"rendered":"Updates on Nicky"},"content":{"rendered":"

Hello everyone!<\/p>\n

\"big\"<\/a>I just updated Nicky’s CaringBridge Blog<\/a> with some info on upcoming trials for those interested with links etc. You do have to create an account to access it, but please know it’s free. I do try to keep sensitive information regarding Nicky’s health on that blog only because there are many troublemakers out there and I can block people access to it that have caused me grief in the past.<\/p>\n

Because of my tireless efforts in raising EB awareness to find a cure for the past 16 years or so, it has made me a target. Thankfully I can block people that say the craziest and rudest things so that’s the reason why I normally moderate or delete posts if they are negative. I simply don’t have time for that. I subscribe to the mantra that if you have nothing nice to say, please don’t say anything at all.<\/p>\n

Also, The T-shirt fundraiser for Nicky’s Medical Fund only has 5 days left! After that the shirt (on the right) is gone forever. I may make another one later this year, but this particular design will be a goner.<\/p>\n

To take a peek, go here–>https:\/\/www.booster.com\/nicky<\/a><\/p>\n

This picture below is from the book “Courage Under Wraps”, available on Jodi’s website jodichampagne.com<\/a>. This is the photographic documentary that depicts the life of my son. I am not sure if this particular pic was ever posted before.<\/p>\n

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Sending Love & Light<\/p>\n

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