{"id":2095,"date":"2016-06-04T10:21:51","date_gmt":"2016-06-04T17:21:51","guid":{"rendered":"http:\/\/blog.silviaskingdom.com\/?p=2095"},"modified":"2017-01-20T06:57:36","modified_gmt":"2017-01-20T14:57:36","slug":"blog-quotes-part-4","status":"publish","type":"post","link":"https:\/\/blog.silviaskingdom.com\/?p=2095","title":{"rendered":"Blog Quotes Part 4"},"content":{"rendered":"

Feel free to save them and share! To save the bigger version of the image, click on the image first to load it, then right click to save image.<\/p>\n

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Time and patience have brought me a long way. I have a sense of peace about things that is hard to explain sometimes.<\/p>\n

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I try my best to own the pain so it does not own me.<\/p>\n

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I kept my personal bankruptcy, which resulted from our insurance company refusing to pay for supplies and other things a secret because I was so incredibly embarrassed and mortified about it. But the secret is out. I am not longer embarrassed or mortified, I am mad as hell.<\/p>\n

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Just as every person is different with their talents and gifts, so are those with Epidermolysis Bullosa. Everyone is different. Respect. Listen. Care.<\/p>\n

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Until there is a full-fledge cure, bandages are key and nobody can afford this stuff. I don’t even dare look at the bill each month. I know it’s in the thousands. THOUSANDS! It’s insane.<\/p>\n

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It’s so easy to judge myself, but the truth is, at the time I did the best I could with the little information I had and little to no bandages available to me.<\/p>\n

Love & Light,<\/p>\n

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