{"id":4056,"date":"2020-05-30T10:04:06","date_gmt":"2020-05-30T17:04:06","guid":{"rendered":"http:\/\/blog.silviaskingdom.com\/?p=4056"},"modified":"2020-05-30T10:16:54","modified_gmt":"2020-05-30T17:16:54","slug":"4056","status":"publish","type":"post","link":"https:\/\/blog.silviaskingdom.com\/?p=4056","title":{"rendered":"Blog Quotes"},"content":{"rendered":"\n
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My biggest challenge to overcome is still acceptance on some days. Not every day, mind you, just some days.<\/figcaption><\/figure><\/div>\n\n\n\n
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I fight to have hope every day with every fiber of my being.<\/figcaption><\/figure><\/div>\n\n\n\n
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It is exhausting being afraid for your health care every single day. Continuously, the message received is disabled lives do not deserve to exist.<\/figcaption><\/figure><\/div>\n\n\n\n
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Nicky is always very open for awareness, he wants a cure, and he’s not, and never has been, modest about taking photos of his wounds.<\/figcaption><\/figure><\/div>\n\n\n\n
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There are thousands of genetic disorders out there, and even IF Nicky’s dad and I had done genetic testing prior to conceiving, they would have NEVER checked for EB. It’s just too rare.<\/figcaption><\/figure><\/div>\n\n\n\n
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Nicky’s body makes no collagen whatsoever, so no cream or anything else I could give him to “boost” his collagen production would work because his body does not know hot to make it at all.<\/figcaption><\/figure><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":3353,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4,411],"tags":[650,193,387,343,115,19,358,713,189,22,111,222,462,250,454],"class_list":["post-4056","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog","category-silviasquotes","tag-cureeb","tag-acceptance","tag-awareness","tag-blog-quotes","tag-cure","tag-epidermolysis-bullosa","tag-exhaustion","tag-genetic-disorders","tag-healing","tag-health-care","tag-hope","tag-quotes","tag-rare-disease","tag-rare-disorder","tag-silvias-quotes"],"_links":{"self":[{"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/posts\/4056","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=4056"}],"version-history":[{"count":2,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/posts\/4056\/revisions"}],"predecessor-version":[{"id":4066,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/posts\/4056\/revisions\/4066"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/media\/3353"}],"wp:attachment":[{"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=4056"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=4056"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=4056"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}