{"id":492,"date":"2012-11-08T20:00:46","date_gmt":"2012-11-08T20:00:46","guid":{"rendered":"http:\/\/blog.silviaskingdom.com\/?p=492"},"modified":"2012-11-08T20:00:46","modified_gmt":"2012-11-08T20:00:46","slug":"nicky-living-with-eb-project","status":"publish","type":"post","link":"https:\/\/blog.silviaskingdom.com\/?p=492","title":{"rendered":"Nicky: Living with EB project"},"content":{"rendered":"<p>As some of you may or may not know, my son Nicholas was born with a rare and incredibly painful skin disorder called Epidermolysis Bullosa, the Recessive Dystrophic form. He will be 16 years old in a couple of weeks. A photographer, a dear friend that I met at the College I am attending, wants to make a difference and help the cause, we need a cure and we need it NOW! She started photographing Nicky&#8217;s life and him living with EB in an effort to make a difference. This is a project that may take months to finish. She is photographing Nicky&#8217;s bandage changes, him at school, at the doctor, at the hospital and in whatever situation you can imagine to help gain a broader understanding of what his life is like.<\/p>\n<p>She has started a Facebook page for this project where she is sharing her thoughts and her photos and anything else related to it.<\/p>\n<p>I hope you can LIKE IT!<\/p>\n<p><center><iframe loading=\"lazy\" style=\"border: none; overflow: hidden; width: 520px; height: 190px;\" src=\"\/\/www.facebook.com\/plugins\/likebox.php?href=https%3A%2F%2Fwww.facebook.com%2FNickyLivingWithEB&amp;width=520&amp;height=190&amp;colorscheme=light&amp;show_faces=true&amp;border_color&amp;stream=false&amp;header=true&amp;appId=285484834874737\" frameborder=\"0\" scrolling=\"no\" width=\"320\" height=\"240\"><\/iframe><\/center><center><\/center><center><\/center><center>Blessings!<\/center><center><a href=\"http:\/\/blog.silviaskingdom.com\/wp-content\/uploads\/2012\/11\/Animation141_silvia.gif\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-493\" title=\"Animation141_silvia\" src=\"http:\/\/blog.silviaskingdom.com\/wp-content\/uploads\/2012\/11\/Animation141_silvia.gif\" alt=\"\" width=\"235\" height=\"151\" \/><\/a><\/center><\/p>\n<div class=\"fb-background-color\">\n\t\t\t  <div \n\t\t\t  \tclass = \"fb-comments\" \n\t\t\t  \tdata-href = \"https:\/\/blog.silviaskingdom.com\/?p=492\"\n\t\t\t  \tdata-numposts = \"20\"\n\t\t\t  \tdata-lazy = \"true\"\n\t\t\t\tdata-colorscheme = \"light\"\n\t\t\t\tdata-order-by = \"reverse_time\"\n\t\t\t\tdata-mobile=true>\n\t\t\t  <\/div><\/div>\n\t\t  <style>\n\t\t    .fb-background-color {\n\t\t\t\tbackground: #ffffff !important;\n\t\t\t}\n\t\t\t.fb_iframe_widget_fluid_desktop iframe {\n\t\t\t    width: 100% !important;\n\t\t\t}\n\t\t  <\/style>\n\t\t  ","protected":false},"excerpt":{"rendered":"<p>As some of you may or may not know, my son Nicholas was born with a rare and incredibly painful skin disorder called Epidermolysis Bullosa, the Recessive Dystrophic form. He will be 16 years old in a couple of weeks. A photographer, a dear friend that I met at the&#46;&#46;&#46;<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4],"tags":[19,52],"class_list":["post-492","post","type-post","status-publish","format-standard","hentry","category-blog","tag-epidermolysis-bullosa","tag-nicky"],"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/posts\/492","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=492"}],"version-history":[{"count":2,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/posts\/492\/revisions"}],"predecessor-version":[{"id":495,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=\/wp\/v2\/posts\/492\/revisions\/495"}],"wp:attachment":[{"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=492"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=492"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blog.silviaskingdom.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=492"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}