A Mother's Journey

Hi! I'm Silvia

I am the mother of 3 boys, 2 in heaven, 1 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who was born with the Recessive Dystrophic form of Epidermolysis Bullosa. He died in late 2021. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more. I hope my life and my struggles through grief and special need parenting inspire you to enjoy each moment.

Blog · October 24, 2015

“Butterfly Talk” on YouTube

I am slowly adding all the episodes of “Butterfly Talk” on YouTube as time allows for your listening and viewing pleasure.

Butterfly Talk is a monthly radio show/podcast I run myself. The episodes not only are available on the Blog Talk Radio website but also on iTunes. Putting them on YouTube expands the audience, the more awareness the better!

This was the first “official” episode with my good friend Lorraine Montello as my first guest. Her son Garrett has RDEB and is 18 years old. She also started a business with her son called “Montello Fine Foods“.

Happy Listening!!