I was speaking to a dear relative of mine a few weeks ago, and after I told her about Nicky’s antibodies issues that very well might prevent any cure that comes his way because his body will automatically reject it by “fighting” the new collagen that’s introduced, she asked me quite curiously how I can still have hope.
My answer was swift. “I just can’t give up”, I told her.
Nonetheless, it’s hard to have hope when there seems to be no light at the end of the tunnel, knowing that even if a light might be in our peripheral vision, it could very well be an illusion. Miracles happen every day. Why not one for Nicky?
If I learned anything in these past 19 years taking care of my son is that true love is unconditional. Unconditional love sees past disability, fear, sadness and tragedy. Love is seeing rainbows when it pours, seeing the light in the darkness, love is dreaming, imagining, having the courage to move forward, appreciating each moment and having that never-giving-up spirit. I owe it all to Nicky.
Every morning I am thankful of a new day with my son. A new day of love and kisses. As long as I have the privilege and as long as my health allows, I will always be there for him. I will always strive to improve his life despite his disease being degenerative. I will never give up. It has been hard but I look forward to every moment I am given, good and bad. The good times give me hope and the bad times allow me an appreciation of them. And love sees me through it all.
These words from my favorite spirit, Erik Medhus, struck a chord with me today:
“When you’re in the eye of the hurricane, don’t forget to stop and look up. Going through what feels like a loss, will ultimately be a gain for you, though you can’t see it right now. Things change, open your heart, become adaptable and you’ll suffer/struggle less.”
It is my fervent hope that everyone sees the miracles that are often camouflaged in hardships.
“Miracles happen everyday, change your perception of what a miracle is and you’ll see them all around you.” ~Jon Bon Jovi
Love & Light,
