Nicky was born on November 25th, 1996 and was diagnosed with Recessive Dystrophic Epidermolysis Bullosa (RDEB).
EB is a rare genetic skin disorder, his body does not produce a vital protein that glues the layers of his skin together, hence the slightest friction causes painful blisters and wounds. His body has to be covered with special wound products and bandages to allow his wounds to heal and protect his skin from further damage.
There is no treatment or cure at this time.
You can help Nicky and all the children like him by helping us raise awareness!
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Follow these links for more information:
Debra of America
EB Medical Research Foundation
EB Research Partnership