Silvia's Kingdom

A Mother's Journey

Hi! I'm Silvia

I am the mother of 3 boys, 2 in heaven, 1 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who was born with the Recessive Dystrophic form of Epidermolysis Bullosa. He died in late 2021. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more. I hope my life and my struggles through grief and special need parenting inspire you to enjoy each moment.

Blog / Silvia's Blog Quotes · July 18, 2019

Blog Quotes

I worship my son, I will do anything and everything for him, and that’s the truth.

I always believed that one of the most important things kids need to help them survive in this world is someone who’s crazy about them.

My kid is fighting EB with courage!

If I was to give anyone advice on how to help a special need parent, is to please be part of their solution, not their ongoing problems. Please be that person who wants to help their child instead of giving them negative feedback be the person eager to offer uplifting encouragement. We all need that.

It’s very gratifying to learn about your ancestor’s lives and get a glimpse of what they lived through.

Every day since he was born I have had to evaluate the way I can help him without hurting him too much. I have had to balance the risks and benefits of everything I do to him.

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