September 20th was the magical day that the book ‘Courage Under Wraps’ by Jodi Champagne was displayed at a Gallery in Hollywood along with many other photographers’ works. This is the Photographic Documentary Book about the life of my son with Epidermolysis Bullosa. Here are some photos from the event.
Jodi with Nicky & Connor under the display
The book is available from Blurb as a print and also as a PDF and as an ebook for the iPad. The book is 142 pages and it has hundreds of photos of Nicky suffering and living with EB, from bandage changes to trips to the Doctors, hydrotherapy and iron infusions. Part of the proceedings from the book go to the EBMRF (Epidermolysis Bullosa Medical Research Foundation)
http://www.ebkids.org/
Jodi is working on getting it available for the Kindle and Nook, but it’s quite tricky and I am not sure how long it will be before that is going to happen.
I encourage everyone to get it at Blurb by clicking
—>>>HERE<<<—
I also encourage everyone seeing this post to purchase the book and show it to someone that might help spread the word through the media, either in articles in magazines, radio or TV.
WE NEED YOUR HELP!!!! EB NEEDS A CURE!!!
Thank You for your support and for helping me spread EB Awareness.
Nicky…
Jodi and I
With my BFF Kelly and her mom Dianna, who came to the event from Arizona. <3
We love Nicky and all the EB children!!!
