A Mother's Journey
My heartfelt book, Losing Alex, which I wrote after the loss of my first baby, Alex, who was stillborn at full term, is now officially an AudioBook and I couldn't be more proud and humbled by the amazing voice of Marsha Waterbury, for lending her talents for my story.
March 2017 – This is still one of my favorite pictures ever! Kaley Cuoco on the set of Big Bang Theory hugging my Nicky. She’s a champion for EB Awareness and is amazing! More of Nicky’s life in the book –> http://www.butterflychildamothersjourney.com/ Post Views: 2,370
A lot of times, when seeing articles posted about children with EB, we see these sorts of titles: Girl can’t hug parents because rare skin condition causes her to blister when touched Video: Mom Can’t Hug Baby Little Boy Blisters When He’s Touched Due to Rare Disorder Adorable five-year-old girl...
