A Mother's Journey
Hi! I'm Silvia
I am the mother of 3 boys, 2 in heaven, 1 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who was born with the Recessive Dystrophic form of Epidermolysis Bullosa. He died in late 2021. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more. I hope my life and my struggles through grief and special need parenting inspire you to enjoy each moment.
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My Other Books
Losing Alex is also an audiobook!
My heartfelt book, Losing Alex, which I wrote after the loss of my first baby, Alex, who was stillborn at full term, is now officially an AudioBook and I couldn't be more proud and humbled by the amazing voice of Marsha Waterbury, for lending her talents for my story.
Click Below to see it or purchase it!
Prices for the book start at only $2.99!
As Seen on TV (Click to Watch!)
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Epidermolysis Bullosa Awareness Week 2018
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Blog Quotes
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EB Awareness Week
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My Top 10 Dalai Lama Quotes
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Nicky’s Life Part 16
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