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There is no sugar-coating EB or trying to make it worse than it is, we couldn’t imagine a worse condition, ever.
It’s treasuring the little things that inspires to greater things… and it is the little things that make life worth living.
I have a child that loves me more than anything, he is kind, compassionate, polite and an inspiration to anyone that meets him.
When that storm hits, grab that umbrella and be kind to yourself, because life goes on.
Maturity is patience. It is the willingness to pass up immediate pleasure in favor of a long term gain.
Unfortunately a morose and sad person isn’t much fun to hang out with, which creates a perpetual cycle.
Love & Light,