A Mother's Journey

Hi! I'm Silvia

I am the mother of 3 boys, 2 in heaven, 1 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who was born with the Recessive Dystrophic form of Epidermolysis Bullosa. He died in late 2021. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more. I hope my life and my struggles through grief and special need parenting inspire you to enjoy each moment.

Blog · August 19, 2015

New Caringbridge Blog and More News!

I just updated Nicky’s Caringbridge Blog this morning…. Thank you for your support and thank you for allowing me to vent.
http://www.caringbridge.org/visit/nickyz

MORE NEWS!

The Audiobook of Losing Alex will be available shortly. It’s so exciting for me!

Also, I was able to lower the cost of my book Butterfly Child – A Mother’s Journey to $14.97 if purchased through the publisher. I can’t do nothing about the price charged by Amazon or B&N though, sorry. That is totally out of my control. That’s how much money they are making off my book, eghads!

I am working on a “hard cover” version of the book as well, mostly for myself, but I will have it available for anyone that might like that.

Love & Light,