Yet, here we are. And I still have some dwindling hope against all odds, because it’s hard to hope when your child pushes against a very strong current.
My hopes and dreams I have for my child die a little more each day as I watch him struggle to just survive.
I surprise myself at the kind of person I’ve become. I literally explode when people treat my son with any degree of disrespect because he does not deserve it. He’s the sweetest boy, ever.
I may not know much, but I am an expert in my child’s needs, and you can bet on that.
One of the nasty side effects of RDEB is that the scarring does not only appear on the outside of the body, but also in mucosal surfaces, such as the eyes, mouth, throat and esophagus.
All you have to do is look at cultures that oppress women and I show you a third world country.