I came across this blog this morning and it gave me pause… It spoke about the sacrifices of a special need parent and what’s involved, which include depression and problems with self-worth among others pressing issues, such as isolation and financial problems. I saw myself in this post… the myself of a few years ago, and how low I felt. The lowest low one can ever imagine. I can’t help but feel that special need parents, as a community, don’t getRead More →

This column that I wrote nearly 10 years ago is worth reposting. I taught my son to laugh at the silliest things from the time he was little. Yes, his life is horribly painful, but this kid can laugh!!! Enjoy! By Silvia Corradin From: Special Mommy Chronicles (Unpublished Column from July 6, 2006) The calendar in my computer room just taught me something today… it said: “A cheerful heart is good medicine.” King Solomon (Proverbs 17:22). It’s so true, too.Read More →

On our first trip to Stanford, back in August 1997, Dr. McGuire told us something that would forever be etched in my mind. He told us that the #1 enemy and the #1 reason for the demise for children with RDEB was infections. To say he scared me to death in one sentence it’s the understatement of the year. Not only he confirmed his RDEB diagnosis, but also mentioned the word ‘death’ and ‘infections’ in it. Fantastic. This was aboutRead More →