Healing

I came across this blog this morning and it gave me pause… It spoke about the sacrifices of a special need parent and what’s involved, which include depression and problems with self-worth among others pressing issues, such as isolation and financial problems. I saw myself in this post… the myself of a few years ago, and how low I felt. The lowest low one can ever imagine. I can’t help but feel that special need parents, as a community, don’t get enough attention nor respect in that regard. Nobody can ever say we don’t make sacrifices for our kids! I see family members dropping off their kids for weeks, even months to grandparents or other relatives, while we cannotRead More

The Healing Power of Humor

This column that I wrote nearly 10 years ago is worth reposting. I taught my son to laugh at the silliest things from the time he was little. Yes, his life is horribly painful, but this kid can laugh!!! Enjoy! By Silvia Corradin From: Special Mommy Chronicles (Unpublished Column from July 6, 2006) The calendar in my computer room just taught me something today… it said: “A cheerful heart is good medicine.” King Solomon (Proverbs 17:22). It’s so true, too. After my son died and for many years after Nicky was born, I was incapable of watching any TV show that was too dramatic, it was only Friends & Seinfeld for me, and I loved Jay Leno! IRead More

Infections Beware!

On our first trip to Stanford, back in August 1997, Dr. McGuire told us something that would forever be etched in my mind. He told us that the #1 enemy and the #1 reason for the demise for children with RDEB was infections. To say he scared me to death in one sentence it’s the understatement of the year. Not only he confirmed his RDEB diagnosis, but also mentioned the word ‘death’ and ‘infections’ in it. Fantastic. This was about 17.5 years ago, at a time where the only information I could get about RDEB was from books, and they were vague. Children with RDEB were (and still are!) rare, and any Doctor I saw back then treatedRead More