Suspend Belief

After I lost Alex at full term 20 years ago, the one thing I could not do is watch anything “dramatic” on TV or the movies. “ER” was popular back then and I avoided it like the plague. 20 years later, Medical Dramas are still hard for me to watch. I was crying so much at the time that I realized that I needed to laugh, I needed to do things that would make me smile and forget, even for a moment, all that I was going through. So, TV shows like “Friends” & “Frasier” became my salvation. A few weeks ago I had a great conversation with a new friend and once he found out that notRead More

Encounters

A few years ago I had a brief encounter with a little girl that I am still thinking about. I was at Children Hospital Los Angeles with my boys; Nicky had an appointment with the endocrinologist (I think?) and on our way out a couple was behind us with this little sweetheart in a big stroller. She had a flower on her hair and a frilly dress on, but what gave us pause was her face. Despite having some sort of excess bone growth condition, which made her head 2-3 times bigger than normal, she sported the sweetest smile on her face. I told the boys to smile and wave back, which they did, and it wasn’t untilRead More

Just Smile!

I had a great friend yesterday ask me if I could write a blog about how people should handle things when they see a child that is disabled. Different. What do they say to the parent? Anything? Should they avoid the child or engage? What’s the appropriate thing to do? I must say, I had to think about this one. Truth be told, being a special need mom can be isolating, lonely.  No one knows what to say to me.  I feel a distance, a disconnect from just about everyone because I know that they don’t know what this feels like and they just can’t relate. I have family members who have not spoken to me in yearsRead More