July 2015

July 23, 2015

Butterfly Talk Podcast about Butterfly Child

It is also available on iTunes! Love, Hugs and EB Awareness! Smooches, Check Out Caregiving Podcasts at Blog Talk Radio with Butterfly Talk on BlogTalkRadio Post Views: 2,612

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July 21, 2015

Nicky’s Life Part 7

This is part 7 of an infinite series of photos I am posting on the Facebook page I have for the book I wrote about my journey raising my son with RDEB (Recessive Dystrophic Epidermolysis Bullosa) called Butterfly Child. I am posting a few images from Nicky’s life and commenting on either what was...

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July 17, 2015

Beliefs

At one point or another in life we have to rely on some aspect of belief to get us through the tough patches of our existence on earth. This is why religions of all kinds sprung up at an early stage of our human evolution. Our souls needed something to...

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July 16, 2015

Narration about my book “Butterfly Child”

Just before my 30th birthday I found out I was pregnant with my first baby. All my friends were already mothers and I had wanted a baby for so long that this pregnancy ended up being something surreal. I walked on air for the entire 9 months, it truly was...

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July 12, 2015

New CaringBridge Blog & Butterfly Talk

A quick note!  I just updated Nicky’s blog at CaringBridge… I talk about a lot of different things going on with Nicky right now. Here’s the link! http://www.caringbridge.org/visit/nickyz/journal/ Also… I have some great guests coming up for August and September, but since this month is so crazy for me, I decided that on...

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July 9, 2015

Nicky’s Life Part 6

This is part 6 of an infinite series of photos I am posting on the Facebook page I have for the book I wrote about my journey raising my son with RDEB (Recessive Dystrophic Epidermolysis Bullosa) called Butterfly Child. I am posting a few images from Nicky’s life and commenting on either what was...

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July 8, 2015

Thank You & Happy Summer!!!

Love seeing all your pics reading ‪#‎butterflychild‬! It’s the perfect summer read! Thank you SO MUCH for sharing these Cristina Battaglin, Dianna Floyd & Molly Holm!! Please share yours with me~! Thank you and Happy Summer!! Post Views: 2,852

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July 5, 2015

When I Can’t Explain, I Show.

It has become apparent over the years that 9 times out of 10, when Nicky tells me his foot is really “bad”, I need to brace myself. This is what I braced myself for a couple of weeks ago… After I took off the bandages, big areas of skin just...

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July 4, 2015

30 Years!

On July 3rd, 1985, the day I turned 21 years old and the day it hit theaters, I saw “Back to the Future” and it became one of my favorite movies of all time instantaneously. So, last night, on my 51st birthday, 30 years later, I watched it again. My...

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