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Silvia's Kingdom

Silvia's Kingdom

A Mother's Journey

Hi! I'm Silvia
I am the mother of 3 boys, 2 in heaven, 1 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who was born with the Recessive Dystrophic form of Epidermolysis Bullosa. He died in late 2021. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more. I hope my life and my struggles through grief and special need parenting inspire you to enjoy each moment.

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Losing Alex is also an audiobook!

My heartfelt book, Losing Alex, which I wrote after the loss of my first baby, Alex, who was stillborn at full term, is now officially an AudioBook and I couldn't be more proud and humbled by the amazing voice of Marsha Waterbury, for lending her talents for my story.

Thank you Marsha!
Click Below to see it or purchase it!
Prices for the book start at only $2.99!

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Blog / Nicky's Life · October 10, 2018

Nicky’s Life Part 68

September 2014

We had quite an encounter with Orlando Bloom at the ROCK4EB Fundraiser in Malibu. We had a 10 minute chat.. He rubbed my shoulder and told me I was a brave woman. Mind Blown!! Then he took a photo with Nicky. A short video of the encounter here: https://www.facebook.com/nick.zahorcak/videos/844285872260202/

More in the book –> http://www.butterflychildamothersjourney.com
Animation337_silvia

 

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ebmom
My heart goes out to those parents that know this My heart goes out to those parents that know this heartache, but also to the siblings that have to see their best friend die. The entire family will need support for years to come 😢 #siblingloss #lossofasibling .
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 #grief #sorrow #loss #losingalovedone #grieftruth  #lifeafterloss #griefjourney  #childloss #losingachild  #angelmom #imissmyson #griefsucks #grieving #ebangel  #bereavedmom #momofanangel  #grievingmother #mourning  #bereavedmother #grievingmom  #grievingsucks #nobodyshoulburytheirchild #rememberingnicky
This necklace caught my eyes the other day. Two he This necklace caught my eyes the other day. Two hearts on the moon. My babies are there… .
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 #grief #sorrow #loss #losingalovedone #grieftruth  #lifeafterloss #griefjourney  #childloss #losingachild  #angelmom #imissmyson #griefsucks #grieving #ebangel  #bereavedmom #momofanangel  #grievingmother #mourning  #bereavedmother #grievingmom  #grievingsucks  #rememberingnicky #rememberingalex 
#stillborn #stillbirth #pregnancyloss #babyloss #babylossawareness #babylosssurvivor #angelbaby
Took Oliver 🐈 to the Vet this past weekend and Took Oliver 🐈 to the Vet this past weekend and the poor sweetie got car sick and threw up all over his cage 😥 I had to get him out to clean it and he just found this comfy spot and wouldn’t move. I just let him have his freedom in the car on our way home. I can’t emphasize enough how special he is. Just… a darling ❤️ .
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#crazycatlady #ilovecats
#persiancat #oliverthepersiancat #catsofinstagram #instacat #cats #persiancatsofinstagram #catsareawesome #catlover#catsarethebesttherapists #catsarehealing
I will always wonder who you might have been my be I will always wonder who you might have been my beautiful boy 🥰 Just having fun with this adorable photo of Nicky when he was 3 years old… #imissmybeautifulboy 
 #grief #sorrow #loss #losingalovedone #grieftruth  #lifeafterloss #griefjourney  #childloss #losingachild  #angelmom #imissmyson #griefsucks #grieving #ebangel  #bereavedmom #momofanangel  #grievingmother #mourning  #bereavedmother #grievingmom  #grievingsucks #nobodyshoulburytheirchild #rememberingnicky
Have I mentioned lately how much I love my husband Have I mentioned lately how much I love my husband? 🥰🥰🥰🥰
June 24th, 2002!!! Happy 20th Anniversary to my o June 24th, 2002!!! 
Happy 20th Anniversary to my one and only <3 My twin flame, my soulmate, my kindred soul, my friend, my lover, my everything. I LOVE YOU!!! <3 <3 <3
#20thanniversary #iloveyou #anniversary
200 days without my baby 😓 #rememberingnicky # 200 days without my baby 😓 #rememberingnicky  #grief #sorrow #loss #losingalovedone #grieftruth  #lifeafterloss #griefjourney  #childloss #losingachild  #angelmom #imissmyson #griefsucks #grieving #ebangel  #bereavedmom #momofanangel  #grievingmother #mourning  #bereavedmother #grievingmom  #grievingsucks #nobodyshoulburytheirchild #200days #ihateeb
#throwbackthursday - June 2015 - I remember taking #throwbackthursday - June 2015 - I remember taking this photo of the “three musketeers “ like it was yesterday. Nicky was so happy to spend time with his EB buddies Stephen and Zach ❤️ at Camp Wonder @csdfcampwonder  I cherish these memories ❤️ #campwonder #csdf #memories #imissmyson
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Tags: Nicky's LifeOrlando BloomROCK4EB

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  • Next Speaking About Stillbirth Shouldn’t be a Taboo
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