I am the mother of 3 boys, 2 in heaven, 1 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who was born with the Recessive Dystrophic form of Epidermolysis Bullosa. He died in late 2021. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more. I hope my life and my struggles through grief and special need parenting inspire you to enjoy each moment.
My heartfelt book, Losing Alex, which I wrote after the loss of my first baby, Alex, who was stillborn at full term, is now officially an AudioBook and I couldn't be more proud and humbled by the amazing voice of Marsha Waterbury, for lending her talents for my story.
Thank you Marsha! Click Below to see it or purchase it! Prices for the book start at only $2.99!
To call our life “extremely frustrating” sometimes it’s a gross understatement
Nobody wants to hear the struggles. No mainstream media is covering that story. The worry, the stress, the frustration. It’s not fake news. It’s our life.
Even though I’ve accepted the diagnosis and our life, sometimes the emotional wound of “what could have been” comes right out in the open.
We don’t choose what happens to us, but we can choose how we react to it.
I don’t complain because it doesn’t help anything. Being happy costs nothing & keeps you healthier.
My mental, emotional, and physical health relies on how I look at things.