I am the mother of 3 boys, 2 in heaven, 1 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who was born with the Recessive Dystrophic form of Epidermolysis Bullosa. He died in late 2021. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more. I hope my life and my struggles through grief and special need parenting inspire you to enjoy each moment.
My heartfelt book, Losing Alex, which I wrote after the loss of my first baby, Alex, who was stillborn at full term, is now officially an AudioBook and I couldn't be more proud and humbled by the amazing voice of Marsha Waterbury, for lending her talents for my story.
Thank you Marsha! Click Below to see it or purchase it! Prices for the book start at only $2.99!
I care too much, and it’s OK. I will not let anyone tell me I am wrong to love, to have empathy or compassion. Period.
I want to live a life surrounded by people that believe in human decency, my emotional health demands it.
I will not let anyone make me believe that my “bleeding heart” is a character defect. On the contrary. I choose and I let myself see, feel, understand.
There is a shadow overwhelming everything and that is how much my son is suffering.
It’s exhausting to try to explain to people why my child is entitled as the next person to his life when there is a notion out there that he is taking up too many resources.
Never argue with someone’s belief deeply rooted in something they felt on their own skin. Not only it shows absolute disrespect for their struggles, but since your opinion is one not rooted in a personal experience, it means absolutely nothing to them.