A Mother's Journey

Hi! I'm Silvia

I am the mother of 3 boys, 2 in heaven, 1 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who was born with the Recessive Dystrophic form of Epidermolysis Bullosa. He died in late 2021. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more. I hope my life and my struggles through grief and special need parenting inspire you to enjoy each moment.

Blog / Butterly Talk YouTube Show · February 22, 2021

Butterfly Talk Episode 11 – 5 Important Ways to Help Special Need Parents

New episode of Butterfly Talk ready to view! If you want to be able to help a friend or family member that has a child with special needs, I hope my super-important tips can help you!

Butterfly Talk is a YouTube show where I talk mom to mom about different aspects of coping and celebrating our amazing kids.
Enjoy and I hope it’s helpful!