Planning a year from now, a month from now or a week from now isn’t always an option. I make and break plans constantly because my child’s health can turn on a dime.
We spend our days changing bandages, fiddling with medications, with needle pokes, blood draws & infusions and we measure milestones with wound healing and high red cell counts.
One would think that after 20 years and 2 bankruptcies I would be used to this hellhole of a place where Insurance companies dictate the life and death of people, but, sorry, it still makes me mad.
Quiet people live internally a lot. They write their feelings out. They also learn to listen, which is a wonderful quality.
Look, I was not happy with the election results, but I care about my health too much to spend my time badmouthing, name calling or insulting others who don’t think they way I do and becoming this hateful person I am not.
My son’s disability has changed me immeasurably. I still have hope in my heart because he deserves a cure.
