respect

April 22, 2018

#MeToo

I know I talk a lot about my son, but today I want to address the #metoo movement as I feel it’s been long time coming. Let me go on record to say I’ve never been sexually assaulted. However, this does not mean I cannot say #metoo, as I have...

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May 4, 2016

How To Show Respect to an EB Parent

The other day Nicky had his first appointment with a Physical Therapist in our home. Aside the fact that this was the first time in his life that his insurance approved such a thing, I wasn’t sure exactly how she was going to accomplish anything with Nicky, knowing that moving...

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June 2, 2015

Everyone Matters

Sometime ago I decided not to be angry anymore. I didn’t want to be angry at EB and what it was doing to my son. I was done blowing my lid over things I had no control over. I was tired of being depressed all the time. I was tired of...

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