What I am watching Let’s face it. There aren’t many historical shows that take place in my beloved Italy, so when I heard about the “MEDICI” on Netflix, I was all over it. Season 1 had the further intrigue of starring Dustin Hoffman and Richard Madden. Season 2 jumps a couple of generations. While season 1 told the story of Cosimo de Medici (Madden), season 2 revolves around his grandson, the famous Lorenzo il Magnifico, played handsomely by Daniel Sharman.Read More →

Late last year Nicky started having issues with his G-tube. This is the same g-tube that he has had since March 2000, and we’ve had minor issues since then, but lately it was hurting, more and more, and nothing was helping. After trips to his Doctor and the ER, tube changes etc, it became clear he either needed a new ‘hole” or something was wrong with his stomach. The tube was leaking, it was painful and Nicky could no longerRead More →

June 2000 – Nicky was just a little over 3 years old in this picture hugging Barney. He loved Barney and Teletubbies, Sesame Street and Blue’s Clues, he would watch them all day long, over and over again. At the time he could walk OK, albeit very carefully and slowly, and was a smart as a whip. When the school district came over a year later to see if he was ready for kindergarten he was able to recognize everyRead More →

Nicky’s dad sent me a text from the hospital where Nicky is recovered last night and told me that the case worker came in to tell him that the insurances are covering everything 100%. I almost fell flat on my face. These past couple of months have been truly hard on Nicky, and for our whole family as well. I lost count of all the Emergency Rooms and Doctors we have seen lately, all due to issues arising from hisRead More →

I was reminded recently of how lucky I am that my personal beliefs are rooted in direct personal experiences rather than bigotry, hatred, hearsay & ignorance. Through the storms of my life I kept an open mind and learned things and lessons so many are not privy of. That’s why I like to tell my stories, so that individuals can take heed of my experiences and learn a few things about life without actually going through hell, but it’s sadRead More →

What I am watching If there was one show that I can truly, truly can say it’s my favorite of ALL TIME it’s Outlander, bar none.I wish I can say why. Is it the LOVE? Is it the period drama that I am so fond of? Is it the time-travel stuff that I’ve always found fascinating? Is it the sexiest man I ever laid eyes on Sam Heughan? Giggles 🙂 I do not know, but I am obsessed. It’s theRead More →

I often post updates on the Facebook Page for my son (https://www.facebook.com/NickyLivingWithEB/) about his struggles and our fights, but the fight over his g-tube lately was one for the books. I have learned over the years that I get more bees with honey, but sometimes insurance companies and the rest of them get me over the edge. That’s where my Italian psychotic bitch shows up, and let me tell you, I love her. Of course, being such a rare diseaseRead More →