Just like all EB patients are different, so are the parents. All I ask is a little respect. I’ve taken care of Nicky’s every need since he was born. Please allow me the benefit of the doubt that I know what I am doing.
I’m maxed out with advice. And although I respect you, I don’t need you to judge me or assume. I need you to support me and believe in me. I’m doing the best I can.
I never learned to look down on the poor, the disabled, the disadvantaged, the elderly, and I never will. I don’t judge people I don’t know because I don’t know their story. I don’t know their sacrifices, I don’t know their struggles. I know nothing. I don’t judge, period.
The truth is that I learned over the years to always look for a silver lining and put things into perspective. A lot about life revolves around not what happens to us, but how we deal with it.
Unconditional love sees past disability, fear, sadness and tragedy. Love is seeing rainbows when it pours, seeing the light in the darkness, love is dreaming, imagining, having the courage to move forward, appreciating each moment and having that never-giving-up spirit.For the longest time I felt that “bad things happen to good people” and that is what helped me cope. It worked well for me and I still spread the word ’til this day because that message is so powerful.