Silvia's Kingdom

A Mother's Journey

Hi! I'm Silvia

I am the mother of 3 boys, 2 in heaven, 1 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who was born with the Recessive Dystrophic form of Epidermolysis Bullosa. He died in late 2021. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more. I hope my life and my struggles through grief and special need parenting inspire you to enjoy each moment.

Blog / Silvia's Blog Quotes · May 30, 2020

Blog Quotes

My biggest challenge to overcome is still acceptance on some days. Not every day, mind you, just some days.

I fight to have hope every day with every fiber of my being.

It is exhausting being afraid for your health care every single day. Continuously, the message received is disabled lives do not deserve to exist.

Nicky is always very open for awareness, he wants a cure, and he’s not, and never has been, modest about taking photos of his wounds.

There are thousands of genetic disorders out there, and even IF Nicky’s dad and I had done genetic testing prior to conceiving, they would have NEVER checked for EB. It’s just too rare.

Nicky’s body makes no collagen whatsoever, so no cream or anything else I could give him to “boost” his collagen production would work because his body does not know hot to make it at all.

ebmom

My heart goes out to those parents that know this

My heart goes out to those parents that know this heartache, but also to the siblings that have to see their best friend die. The entire family will need support for years to come 😢 #siblingloss #lossofasibling .
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#grief #sorrow #loss #losingalovedone #grieftruth #lifeafterloss #griefjourney #childloss #losingachild #angelmom #imissmyson #griefsucks #grieving #ebangel #bereavedmom #momofanangel #grievingmother #mourning #bereavedmother #grievingmom #grievingsucks #nobodyshoulburytheirchild #rememberingnicky

This necklace caught my eyes the other day. Two he

This necklace caught my eyes the other day. Two hearts on the moon. My babies are there… .
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#grief #sorrow #loss #losingalovedone #grieftruth #lifeafterloss #griefjourney #childloss #losingachild #angelmom #imissmyson #griefsucks #grieving #ebangel #bereavedmom #momofanangel #grievingmother #mourning #bereavedmother #grievingmom #grievingsucks #rememberingnicky #rememberingalex
#stillborn #stillbirth #pregnancyloss #babyloss #babylossawareness #babylosssurvivor #angelbaby

Took Oliver 🐈 to the Vet this past weekend and

Took Oliver 🐈 to the Vet this past weekend and the poor sweetie got car sick and threw up all over his cage 😥 I had to get him out to clean it and he just found this comfy spot and wouldn’t move. I just let him have his freedom in the car on our way home. I can’t emphasize enough how special he is. Just… a darling ❤️ .
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#crazycatlady #ilovecats
#persiancat #oliverthepersiancat #catsofinstagram #instacat #cats #persiancatsofinstagram #catsareawesome #catlover#catsarethebesttherapists #catsarehealing

I will always wonder who you might have been my be

I will always wonder who you might have been my beautiful boy 🥰 Just having fun with this adorable photo of Nicky when he was 3 years old… #imissmybeautifulboy
#grief #sorrow #loss #losingalovedone #grieftruth #lifeafterloss #griefjourney #childloss #losingachild #angelmom #imissmyson #griefsucks #grieving #ebangel #bereavedmom #momofanangel #grievingmother #mourning #bereavedmother #grievingmom #grievingsucks #nobodyshoulburytheirchild #rememberingnicky

Have I mentioned lately how much I love my husband

Have I mentioned lately how much I love my husband? 🥰🥰🥰🥰

June 24th, 2002!!! Happy 20th Anniversary to my o

June 24th, 2002!!!
Happy 20th Anniversary to my one and only <3 My twin flame, my soulmate, my kindred soul, my friend, my lover, my everything. I LOVE YOU!!! <3 <3 <3
#20thanniversary #iloveyou #anniversary

200 days without my baby 😓 #rememberingnicky #

200 days without my baby 😓 #rememberingnicky #grief #sorrow #loss #losingalovedone #grieftruth #lifeafterloss #griefjourney #childloss #losingachild #angelmom #imissmyson #griefsucks #grieving #ebangel #bereavedmom #momofanangel #grievingmother #mourning #bereavedmother #grievingmom #grievingsucks #nobodyshoulburytheirchild #200days #ihateeb

#throwbackthursday - June 2015 - I remember taking

#throwbackthursday - June 2015 - I remember taking this photo of the “three musketeers “ like it was yesterday. Nicky was so happy to spend time with his EB buddies Stephen and Zach ❤️ at Camp Wonder @csdfcampwonder I cherish these memories ❤️ #campwonder #csdf #memories #imissmyson

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